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  1. MatthiasRiem
    Post

    Opinions on payments to participants in research

    Thank you for explaining this aspect of the meaning of "fee" to me, @Kitty. English is not my first language. According to my lawyer's advice, the...
    Post by: MatthiasRiem, Nov 20, 2023 in forum: Trial design including bias, placebo effect
  2. MatthiasRiem
    Post

    Opinions on payments to participants in research

    Thank you, @Kitty for explaining your situation in the UK. I'm in the Netherlands. Your benefits system is considered draconian over here, but it...
    Post by: MatthiasRiem, Nov 20, 2023 in forum: Trial design including bias, placebo effect
  3. MatthiasRiem
    Post

    Opinions on payments to participants in research

    I voted "It depends". Apart from methodological issues, something that needs consideration - especially in the context of ME - is the effect of...
    Post by: MatthiasRiem, Nov 20, 2023 in forum: Trial design including bias, placebo effect
  4. MatthiasRiem
    Post

    ME/CFS MEDICAL CENTER (the Netherlands & France, also takes patients from other countries using video consultations)

    R. Vermeulen lost his licence as a physician in 2011. F. Visser (of the Visser and Van Campen studies into OI and cardiovascular problems in...
    Post by: MatthiasRiem, Oct 12, 2023 in forum: Other clinics and doctors
  5. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Hi, The Lifelines cohort is a cohort of (from memory) about 160,000 people in the north of the Netherlands that Lifelines claim are...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  6. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Perhaps you are right and asking that question does not add value. That question isn't enough to elicit the information I'm interested in. So let...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  7. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    To add to that excellent list of questions by @Solstice , @FMMM1, if you were to write to Cindy de Boer again, you could also ask (so we have that...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  8. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    This page of Lifelines Wiki provides more information on that: https://wiki-lifelines.web.rug.nl/doku.php?id=cfs_diagnostic_score&s[]=fatigue...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  9. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Just to finish posting the relevant passages from the "Programmatekst" document, here is the continuation of the text posted and translated above....
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  10. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    The explainer box attached to that diagram reads as follows (the crucial sentence was already highlighted by @Medfeb above): Dutch: [SPOILER]...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  11. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Yes! That statement is in the explainer box attached to the diagram I just posted above. That diagram and that explainer will be used in exactly...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  12. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    That passage is followed by a diagram which is either from or based on (haven't read that study, so can't tell): Jason LA, Kot B, Sunnquist M,...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  13. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Thank you, @Arvo, I'll take you up on that offer since doing this fries my brain more than I expected. I will make an attempt, though, to post...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  14. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    In English (machine translation, marginally checked and corrected): [SPOILER]
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  15. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    To start with, here are relevant quotes from the "programme text": On page 7 and 8 under "2.2.2 Criteriasets voor ME/CVS" ("2.2.2 Sets of...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  16. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    I do think Fukuda was not ruled out in a straightforward manner, but statements in the ZonMw documents can certainly be interpreted as implying...
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  17. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Thank you for providing that document and for shedding some light on how it differs from the Lifelines tool!
    Post by: MatthiasRiem, Jun 8, 2023 in forum: ME/CFS research news
  18. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Some more remarks regarding the 'Fatigue (CDC)' page... The page states "The CDC symptom survey as used in Lifelines assesses 8 symptoms that are...
    Post by: MatthiasRiem, Jun 1, 2023 in forum: ME/CFS research news
  19. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Addressing those pages and instruments one by one. 1) Fatigue (general) Asks questions about tiredness, fatigue, and exhaustion, their effect on...
    Post by: MatthiasRiem, Jun 1, 2023 in forum: ME/CFS research news
  20. MatthiasRiem
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Trying to pull together some of the things I have learned about the claims made by ME/CFS Lines regarding their cohort and how they could...
    Post by: MatthiasRiem, Jun 1, 2023 in forum: ME/CFS research news
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