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  1. cfsandmore
    Post

    Severe difficulties with eating in ME/CFS

    I know it is addressed to the NHS but it's so good I wish it was international and addressed to the NIH and CDC.
    Post by: cfsandmore, Apr 24, 2024 at 3:02 PM in forum: ME/CFS research
  2. cfsandmore
    Post

    Review Clinical skills development for healthcare practitioners working with patients with ... (PPS) in healthcare settings 2024 Thursby et al

    I wonder how much incorrect diagnosis will cost the health system. Save a penny, lose a pound. My own Degenerative Disc Disease is costing more...
    Post by: cfsandmore, Mar 24, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. cfsandmore
    Post

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Is Curable an interoceptive therapy?
    Post by: cfsandmore, Mar 23, 2024 in forum: General ME/CFS news
  4. cfsandmore
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    gift articles: https://wapo.st/43rJMoS https://wapo.st/4akWLLb
    Post by: cfsandmore, Mar 20, 2024 in forum: ME/CFS research
  5. cfsandmore
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Dr. Nath has faulty logic. He also seems to enjoy talking out of both sides of his mouth.
    Post by: cfsandmore, Mar 16, 2024 in forum: ME/CFS research
  6. cfsandmore
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    My bolding. Translation. “Planning a gaslighting workshop to make others think using psychological terms is not psychological.” It would be less...
    Post by: cfsandmore, Mar 3, 2024 in forum: ME/CFS research
  7. cfsandmore
    Post

    USA: News from #MEAction

    https://www.meaction.net/2024/02/29/meaction-nih-study-response/
    Post by: cfsandmore, Feb 29, 2024 in forum: News from organisations
  8. cfsandmore
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Is effort preference a sly way to describe avoidance behavior? If Nath meant, why doesn’t he edit the study?
    Post by: cfsandmore, Feb 27, 2024 in forum: ME/CFS research
  9. cfsandmore
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    I wonder if the results will be based on questionnaires. I hope they use fitness counters or maybe iCPETs.
    Post by: cfsandmore, Nov 2, 2023 in forum: ME/CFS research news
  10. cfsandmore
    Post

    Serotonin reduction in post-acute sequelae of viral infection, 2023, Wong, Cherry et al

    Moved post Scientists Offer a New Explanation for Long Covid A team of scientists is proposing a new explanation for some cases of long Covid,...
    Post by: cfsandmore, Oct 17, 2023 in forum: Long Covid research
  11. cfsandmore
    Post

    “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany

    I had blood work this week, it was dark but that's usual for me. My CO2 was 26 millimoles per liter, and my O2 was 98%. I take what the Apheresis...
    Post by: cfsandmore, Oct 7, 2023 in forum: General ME/CFS news
  12. cfsandmore
    Post

    Covid-19 vaccination experiences

    Yes, they suggested one shot for each arm and I'd be done. I refused to get both shots at once. I'm going to wait a few weeks and get my flu shot.
    Post by: cfsandmore, Sep 29, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  13. cfsandmore
    Post

    Covid-19 vaccination experiences

    I got my seventh shot. Fever during the 12-24 hour mark, sore arm. I got it on Sunday felt better on Tuesday. Moved around some only to crash...
    Post by: cfsandmore, Sep 28, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  14. cfsandmore
    Post

    Dr. Kenny DeMeirleir was issued a world patent on a new CFIDS discovery, the increase of asparaginyl beta-hydroxylase (ASPH)

    “He currently serves as medical director at the controversial Whittemore Peterson Institute in Reno, Nevada.[1]”...
    Post by: cfsandmore, Sep 19, 2023 in forum: ME/CFS research news
  15. cfsandmore
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I’m in a crash, my muscles are weaker than just a few months ago.
    Post by: cfsandmore, Sep 13, 2023 in forum: ME/CFS research
  16. cfsandmore
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    That’s the appeal to authority fallacy. https://en.wikipedia.org/wiki/Argument_from_authority The argument is weak, that’s why Dr.T is appealing...
    Post by: cfsandmore, Sep 12, 2023 in forum: ME/CFS research news
  17. cfsandmore
    Post

    Long Covid in the media and social media 2023

    https://www.npr.org/sections/health-shots/2023/09/09/1198342040/long-covid-causes-treatment-research Unraveling long COVID: Here's what...
    Post by: cfsandmore, Sep 10, 2023 in forum: Long Covid news
  18. cfsandmore
    Post

    Opinion The scientization of public policy and politics: A new approach to conceptualizing and identifying the phenomenon, 2023, Roberts

    Is this a historical paper?
    Post by: cfsandmore, Aug 23, 2023 in forum: ME/CFS research
  19. cfsandmore
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    It’s a waste of energy from the people who gave us, CFIDS Association of America aka Solve CFS aka Solve ME/CFS.
    Post by: cfsandmore, Aug 4, 2023 in forum: General ME/CFS news
  20. cfsandmore
    Post

    Long Covid in the media and social media 2023

    https://www.dw.com/en/post-covid-vaccination-syndrome-what-do-we-know/a-65898312 Post-COVID vaccination syndrome: What do we know? Every...
    Post by: cfsandmore, Jun 13, 2023 in forum: Long Covid news
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