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  1. Oni
    Post

    Self-help books for ME/CFS: are they all bad?

    I remember these two, also a long time since I read them, both from ME patients. How to be Sick, Toni Bernhard - Kind of self-help. The Sound of...
    Post by: Oni, Mar 7, 2024 in forum: General ME/CFS discussion
  2. Oni
    Post

    Gentle(st) stretching routine

    Thank you @rvallee for starting this thread and I am grateful for people's various input on the subject. I believe that @PhysiosforME will be...
    Post by: Oni, Jun 20, 2023 in forum: Home adaptations, mobility and personal care
  3. Oni
    Post

    UK - NHS England online tool and clinics for long Covid.

    Without a clear physical cause. Hum... where have I heard this before?
    Post by: Oni, Jan 7, 2022 in forum: Long Covid news
  4. Oni
    Post

    I need a good summary of the problems with mind-body theory

    When I hear this from people I don't personally know I tend to think that they are either trying to be 'nice and neutral' or 'clever and...
    Post by: Oni, Nov 1, 2021 in forum: Other health news and research
  5. Oni
    Post

    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    :laugh:
    Post by: Oni, Sep 28, 2021 in forum: Long Covid news
  6. Oni
    Post

    BMJ Rapid Response: Dr Nina Muirhead

    Yes excellent response Nina @EducateME. Thank you.
    Post by: Oni, Dec 10, 2020 in forum: General ME/CFS news
  7. Oni
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you for all your hard work Suzy!
    Post by: Oni, Nov 14, 2020 in forum: Disease coding
  8. Oni
    Post

    Simon Wessely on Covid-19

    :rolleyes:
    Post by: Oni, Sep 16, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  9. Oni
    Post

    ‘Disgusting’ study rating attractiveness of women with endometriosis retracted by medical journal (2020)

    A surreal and nauseating affair. While the study has been retracted, no formal apology has been given to the participants. This is likely to...
    Post by: Oni, Aug 5, 2020 in forum: Other health news and research
  10. Oni
    Post

    UK: Document: MEDICALLY UNEXPLAINED SYMPTOMS (MUS) IN CHILDREN AND YOUNG PEOPLE, 2018

    I don't even know where to begin... Points 2 and 3 below really take the cake: encouraging practitioners to make a clinical decision based on...
    Post by: Oni, Oct 23, 2019 in forum: Other psychosomatic news and research
  11. Oni
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    @Naomi10 Great piece and so on point. I really look forward to the rest of the serie.
    Post by: Oni, Sep 19, 2019 in forum: General ME/CFS news
  12. Oni
    Post

    Trial By Error: And Another Prebuttal…

    ''In some ways, it feels like I’ve been engaged in a weird kind of academic performance art.'' :joy:
    Post by: Oni, Feb 5, 2019 in forum: General ME/CFS news
  13. Oni
    Post

    sodium cromoglicate: UK prescription

    Yes it is. I use various forms and have had no problems recently. Though at times in the past the pharmacist has had to shop around to source it.
    Post by: Oni, Jan 18, 2019 in forum: Nutrition, food sensitivity, microbiome treatments
  14. Oni
    Post

    UK: The Yellow Card Scheme has been confirmed as the route to report 'adverse incidents' from GET and CBT (or has it?)

    @Tom Kindlon It would be reporting the therapist and their potential unethical behaviour, not the type of therapy itself.
    Post by: Oni, Jul 12, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Oni
    Post

    Video: The PACE trial: a short explanation, Graham McPhee

    Excellent, thanks @Graham!
    Post by: Oni, Jun 19, 2018 in forum: ME/CFS research news
  16. Oni
    Post

    Interview with Howard Bloom Where He Talks Extensively About Severe ME Viewed Over 500000 Times in 1st Day

    He was also involved in the initial fundraising campaign of Canary in a Coal Mine (aka Unrest) back in 2013. [MEDIA]
    Post by: Oni, May 23, 2018 in forum: General Advocacy Discussions
  17. Oni
    Post

    Syndrome de fatigue chronique : Que conclure de la réévaluation de l’essai clinique PACE ?

    Hi @Trish It's not a recognised News source. It's a blog run by a few people (unclear how many) and interested in science. A cursory look shows...
    Post by: Oni, Mar 24, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Oni
    Post

    Science for ME PACE Briefing document

    Great summary, thank you!
    Post by: Oni, Mar 23, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Oni
    Post

    does anyone get these symptoms? (mainly skin-based!)

    Here you go: Mast Cell Activation (UK only) https://www.facebook.com/groups/368740546663534/files/ Check the files for info on practitioners etc....
    Post by: Oni, Mar 14, 2018 in forum: General and other signs and symptoms
  20. Oni
    Post

    does anyone get these symptoms? (mainly skin-based!)

    Really varies I think but mostly unaware of MCAS as it is an emerging condition. Mine not very knowledgeable initially but was willing to learn....
    Post by: Oni, Mar 14, 2018 in forum: General and other signs and symptoms
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