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  1. JohnM
    Post

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    The dysregulation model is most likely a reference to an assumed dysregulation of the HPA axis, for which there are no tests available, as I was...
    Post by: JohnM, Mar 11, 2021 in forum: News from organisations
  2. JohnM
    Post

    Survey of activity pacing across healthcare professionals informs a new activity pacing framework for chronic pain/fatigue, 2019, Antcliff et al

    "Grading Activity Manual - (Reprinted with permisssion from Fighting Fatigue: a practical guide to managing the symptoms of CFS/ME)" - is the...
    Post by: JohnM, Aug 21, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. JohnM
    Post

    Sheffield ME and FM conference 18 Oct, David Tuller: Sheffield - 23/24 Oct 2018

    If anyone is going to today's event, do say hello .. just booked my ticket, 'n heading out my door shortly. Thanks to all involved in setting this...
    Post by: JohnM, Oct 24, 2018 in forum: Advocacy Projects and Campaigns
  4. JohnM
    Post

    AFME provide new self advocacy support material

    Pretty much agree with all the above, but would like to add the following: as compared with the following twitter quotes from Prof M Sharpe on...
    Post by: JohnM, May 2, 2018 in forum: General Advocacy Discussions
  5. JohnM
    Post

    Nederlands Dans Theater with video dedicated ME-patients everywhere

    Indeed .. many thanks to NDT and Anil (@Grigor if memory serves?), and brought back some happy memories. I was fortunate enough to see an NDT2...
    Post by: JohnM, May 2, 2018 in forum: General ME/CFS news
  6. JohnM
    Post

    WHO ME/CFS coding - April to May 2018

    Post by: JohnM, Apr 27, 2018 in forum: Disease coding
  7. JohnM
    Post

    WHO ME/CFS coding - April to May 2018

    Post by: JohnM, Apr 27, 2018 in forum: Disease coding
  8. JohnM
    Post

    WHO ME/CFS coding - April to May 2018

    Post by: JohnM, Apr 27, 2018 in forum: Disease coding
  9. JohnM
    Post

    WHO ME/CFS coding - April to May 2018

    Perhaps the following extracts taken from https://dxrevisionwatch.files.wordpress.com/2018/04/bdd-3.pdf will further help some? I will break into...
    Post by: JohnM, Apr 27, 2018 in forum: Disease coding
  10. JohnM
    Post

    Article: ME patients misunderstand, Andresen, 2018

    Dear Woolie, Must be down to you being a 'yes-person' and/or your altruistic tendencies then .. tell me it ain't so, (not that I'd believe you...
    Post by: JohnM, Apr 26, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. JohnM
    Post

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    The press release is not from the authors themselves, but is a release by K-PAX .. further discussion can be found here Russell. Wishing everyone...
    Post by: JohnM, Apr 25, 2018 in forum: Drug and supplement treatments
  12. JohnM
    Post

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Do you have any further updates about this study Russell? For my part, I'm wondering if the study discussed here on our forum - Mechanisms of...
    Post by: JohnM, Apr 24, 2018 in forum: News from organisations
  13. JohnM
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Second donation done. Sincere thanks for all your work on our behalf @dave30th. Wishing everyone improved health and every happiness. John :)
    Post by: JohnM, Apr 24, 2018 in forum: General ME/CFS news
  14. JohnM
    Post

    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    On a perusal of the link provided by @Andy, I noted that her last project - Bibliotherapy for Premature Ejaculation - an article published in...
    Post by: JohnM, Apr 20, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. JohnM
    Post

    Forward ME Group – Bodily Stress Syndrome

    @Dx Revision Watch Do you have a link to this latest document dated the 10th April 2018, to which you refer? I have just been on the ME Research...
    Post by: JohnM, Apr 11, 2018 in forum: General ME/CFS news
  16. JohnM
    Post

    AFME decide Geneva is where their #millionsmissing contribution should be

    Yep! And to think there is already an event planned right on their doorstep in Bristol. :banghead: There is more information to be found here...
    Post by: JohnM, Apr 10, 2018 in forum: General Advocacy Discussions
  17. JohnM
    Post

    Tinnitus poll: Do you experience it?

    Similar to John Mac .. also only in my right ear, but also intermittent through each day, due to some sort of positional issue and/or a suspected...
    Post by: JohnM, Apr 6, 2018 in forum: General and other signs and symptoms
  18. JohnM
    Post

    (Not a recommendation) [UK] National Inpatient Centre for Psychological Medicine (NICPM)

    @Tal Thank you for continuing to engage with us all here on this forum, and for taking the time to post further information, regards your...
    Post by: JohnM, Apr 6, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. JohnM
    Post

    (Not a recommendation) [UK] National Inpatient Centre for Psychological Medicine (NICPM)

    Always enjoyed my visits to the 'The Duck and Drake' in my formative years/misspent youth (take your pick) .. had a great choice on the jukebox to...
    Post by: JohnM, Apr 5, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. JohnM
    Post

    Boom & Bust, where's the evidence?

    About sums it up for my experience Barry, and what I think you are describing is fatigability. This is not the same as simply feeling tired, and...
    Post by: JohnM, Apr 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
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