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  1. Kiristar
    Post

    United Kingdom: National Health Service (NHS) news

    He's probably there to help with the privatisation I just saw this and felt sick too. And the ' long covid (and ME) is fnd' article he tweeted...
    Post by: Kiristar, Jan 5, 2023 in forum: News from organisations
  2. Kiristar
    Post

    Evidence that M.E. isn’t contagious?

    I have been married twice each time over a decade with partners and zero contagion even with "marital relations". If there was actually contagion...
    Post by: Kiristar, Oct 30, 2022 in forum: General ME/CFS discussion
  3. Kiristar
    Thread

    DNA sampling

    I'm seeing increasing research into the genetics of ME like the recent precision analytics paper. So a general question. Has anyone sequenced...
    Thread by: Kiristar, Oct 30, 2022, 8 replies, in forum: Laboratory and genetic testing, medical imaging
  4. Kiristar
    Post

    Can I change my GP record terminology (UK)?

    Thanks for explaining that. I was very young in the eighties so wasn't even aware of the condition by either name. It's funny how words take on a...
    Post by: Kiristar, Oct 13, 2022 in forum: Diagnostic Criteria and Naming Discussions
  5. Kiristar
    Post

    Can I change my GP record terminology (UK)?

    Interesting you say that. I'm sure you'll know much better than me about any distinctions between the two made within the medical profession. I'd...
    Post by: Kiristar, Oct 13, 2022 in forum: Diagnostic Criteria and Naming Discussions
  6. Kiristar
    Post

    Can I change my GP record terminology (UK)?

    Hi and many thanks for explaining. Interesting WHO see it as fitting under Rheumatology despite classing it as a neurological condition. I had an...
    Post by: Kiristar, Oct 13, 2022 in forum: Diagnostic Criteria and Naming Discussions
  7. Kiristar
    Post

    Can I change my GP record terminology (UK)?

    I found a bit of info on the MEA site that appeared to suggest it could now also be coded as ME/CFS or PVFS in UK, and that you could get your...
    Post by: Kiristar, Oct 11, 2022 in forum: Diagnostic Criteria and Naming Discussions
  8. Kiristar
    Thread

    Can I change my GP record terminology (UK)?

    I got my patient summary today and rather depressingly it states I have "chronic fatigue syndrome" (xa01f). Which the more I learn about the...
    Thread by: Kiristar, Oct 11, 2022, 10 replies, in forum: Diagnostic Criteria and Naming Discussions
  9. Kiristar
    Post

    Who Hijacked ME?

    One other dimension is that back then little was known about longitudinal disease evolution. My symptoms and how they behave are vastly different...
    Post by: Kiristar, Oct 11, 2022 in forum: Diagnostic Criteria and Naming Discussions
  10. Kiristar
    Post

    Vagus Nerve Stimulation

    I had a parasym and was told to leave it on 200 and 20 and only adjust the intensity level and time as variables. I got up to about an hour but...
    Post by: Kiristar, Feb 16, 2022 in forum: Other treatments
  11. Kiristar
    Post

    Low-dose Naltrexone articles and experiences

    Merged thread Making a case for LDN (Low Dose Naltrexone) So I've finally seen a reputable consultant and he wants to prescribe A b12, B LDN C...
    Post by: Kiristar, Feb 15, 2022 in forum: Drug and supplement treatments
  12. Kiristar
    Post

    United Kingdom: Dr Basant Puri of Brakespear Clinic

    Thanks Jem, I didn't know about the book. Many Thanks. Funnily enough that ivig post popped up on my Facebook feed this morning. I was...
    Post by: Kiristar, Nov 13, 2021 in forum: UK clinics and doctors
  13. Kiristar
    Post

    Private UK Consultants not using the psycho-social model recommendations

    Hi there @batstork Ive been compiling a similar list of names. I'd love to hear your experiences. Who did you see in the end, how did your...
    Post by: Kiristar, Nov 13, 2021 in forum: UK clinics and doctors
  14. Kiristar
    Thread

    United Kingdom: Dr Basant Puri of Brakespear Clinic

    Uk based He seems to practice privately at Brakespear Clinic in Hemel Hempstead. His recent papers centre on Nitro and Oxidative stress theory and...
    Thread by: Kiristar, Nov 13, 2021, 5 replies, in forum: UK clinics and doctors
  15. Kiristar
    Post

    United Kingdom - Suffolk and Norfolk ME/CFS services

    Well. Re the 3 intra Norfolk ccgs. I have the misfortune to live right on the border of 2 of the 3 Norfolk services (my home in one and GP surgery...
    Post by: Kiristar, Nov 8, 2021 in forum: UK clinics and doctors
  16. Kiristar
    Post

    Open Medicine Foundation (OMF)

    Merged thread 3 New OMF Studies on Biomarkers, Phenotyping and ME onset post Covid I thought that this Article Interviewing Alain Moreau was...
    Post by: Kiristar, Nov 8, 2021 in forum: News from organisations
  17. Kiristar
    Post

    Deficient butyrate-producing capacity in the gut microbiome is associated with bacterial network disturbances and fatigue..., 2023, Guo,Lipkin et al

    Wonder if this might be one reason why FMT sometimes proves successful...?
    Post by: Kiristar, Nov 1, 2021 in forum: ME/CFS research
  18. Kiristar
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yes, I've wondered what it was that made them think the guidelines were "implementable" and what if any wording tweaks /concessions were made. I...
    Post by: Kiristar, Nov 1, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  19. Kiristar
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Have people seen this horrendous statement? https://www.rcplondon.ac.uk/news/medical-leaders-sign-joint-statement-response-nice-guidance-mecfs It...
    Post by: Kiristar, Oct 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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