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I have a paternal aunt with lupus. She was diagnosed in her 70's after becoming very severe. She said the diagnosis finally explained why she had complications with her pregnancies. I got to see her last year and we were able to talk about our illnesses. I did say to her that we might have a...

Further back on the thread we were talking about heart strain and having to slow down when walking. I keep forgetting to liken it to the Covid slow walk and breathiness. It felt similar to how my ME is at times in that regard. Might not mean anything, just thought I would mention.

My ME onset was via a bad cold. The first symptom was severe lightheadedness and imbalance when walking. I think it would have been months later when I noticed I had cognitive changes. Actually, I have just remembered that it was the following year because I had to drop out of study due to the...

I had quite a low mood yesterday and the day before. Also the signs of PEM, legs affected, heart and breathing felt strained and more difficult and other symptoms. I know how this came about. Sunday last I had to get out to the garden and tidy up a row of weeds along a fence line. I couldn't...

With the recent changes to the forum I'm trying to find another thread and I come across this one. New members might want to add their progression of ME?

Yes, I think I might have come in through something like Reiter's. I don't get the swollen joints though. I tried to explain to a GP when 20 years old that something significant had happened. I was never referred or given any idea what could have happened. I wouldn't have even known what...

Yes I get that all the time and only yesterday I had to walk slower when out. It feels like heart strain and especially now that I am older I think I might have a heart attack if I don't slow down.

I do tend to over ride brain symptoms because I get so affected easily. I can read a pleasant book longer than I can read the gymnastics of conversations on a forum. There is more thinking to do on a forum reading. I have always had a reactive emotional personality, which is exacerbated even...

I am moderate now with physical PEM but the brain is still more severe. I struggle with boredom and it is tortuous to lie in bed having to rest the brain all the time. I feel so unproductive. Even after all the years of ME I experience the keeping from mental PEM is the hardest for me due to the...

Yes, I love living in the city but noise is a huge problem for me and there are bound to be other things I can't think of at the moment. I have often caught a bus or train at rush hour in the morning just to pretend I am going to work along side everyone else. The feeling of normalcy (even...

Thanks Kitty, haha, no that was a cool response. Food for thought. And thanks Wigglethemouse.

Thanks for all the info @wigglethemouse I might spend some time on this and gather as much understanding as I can.

I'll never forget when I holidayed at a very quiet spot at a beach camping for 2 weeks many years ago far away from the hustle and bustle of the city where I live. When I arrived home there was a very deep feeling of utter quiet and stillness in my body. Every cell felt quiet. It was like I had...

Merged Is there any reliable company in the world where I could get my complete list of genes? I would love to know what comes up for me. Does anyone know where I could get it done and is it expensive? Thanks.

Yes, I also have that one too with my left thumb base. It plays up every so often and boy does it hurt trying pull up pants especially. I forget to protect it. I've had the ligament, tendon problem since I was 20 years old. This was the time that I think I got something that might have made me...

I hope we will find out more as time goes on whether our ligaments and tendons are affected by ME. Something has never felt right with mine.

Thanks Kitty. Interesting. It doesn't help getting older either. I have to think twice about crouching down onto the floor at the library these days. Trying to haul myself up I feel like an elephant trying to get up.

Ok, so ligaments connect bone to bone for stability of joints restricting excessive movement and tendons connect muscle to bone facilitating movement by transmitting force from muscle to bone. I can't get my head around that explanation for tendons. I feel like I want to reword it so I can...

I think my ligaments and tendons are caught up in the ME. I've had an aching hand this last week and it feels like any repetitious use like typing on the keyboard easily causes an effect. I'm also having a longer bout of a shoulder joint that feels like it could dislocate if not careful. I also...

Thank you for reassuring me. I get really upset easily about things like this.