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  1. lunarainbows
    Post

    Bowel prep

    I had a colonoscopy, endoscopy and endoscopic ultrasound under general anaesthetic (privately, but at an NHS hospital). So it definitely can be...
    Post by: lunarainbows, Feb 11, 2024 in forum: Other specific illnesses
  2. lunarainbows
    Post

    Vagus Nerve Stimulation

    I haven’t had any amazing results. It’s helped my cluster headache a little - maybe 15 to 20%, so far no improvement in migraine, or in any other...
    Post by: lunarainbows, Nov 24, 2023 in forum: Other treatments
  3. lunarainbows
    Post

    Covid-19 vaccines and vaccinations

    I just got the Autumn booster - which was the “new” Pfizer vaccine (U.K.) - does anyone know, is this the updated one that covers the variants...
    Post by: lunarainbows, Oct 17, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  4. lunarainbows
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    “Under his plans, currently out for consultation, the Department for Work and Pensions (DWP) would no longer take any account of whether a...
    Post by: lunarainbows, Oct 13, 2023 in forum: Work, Finances and Disability Insurance
  5. lunarainbows
    Post

    Feeling insecure about romantic relationships

    All of these are the same for me (except the higher education/job experience which I was able to experience 3-4 years of). I’m in a relationship...
    Post by: lunarainbows, Oct 12, 2023 in forum: Relationships and coping
  6. lunarainbows
    Post

    Covid-19 vaccination experiences

    They don’t say what they mean by more doses.. I’m guessing they give the dose as normal this Autumn, but then give another booster dose in Spring?...
    Post by: lunarainbows, Oct 2, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  7. lunarainbows
    Post

    Covid-19 vaccination experiences

    I was going to get my covid vaccination next week - but I realised I’m currently on a high dose of steroids and so severely immunosuppressed and...
    Post by: lunarainbows, Oct 2, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  8. lunarainbows
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Oh I also have the Flare Calmer earplugs and I’m not convinced that it does much (for me at least). It definitely doesn’t reduce noise like...
    Post by: lunarainbows, Oct 1, 2023 in forum: Hypersensitivity and Intolerance Reactions
  9. lunarainbows
    Post

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Loop Quiet vs Quiet-on Vs Bose: I tested the Quiet-On earplugs last night (the noise cancelling in ear-buds that you can sleep in), they helped...
    Post by: lunarainbows, Oct 1, 2023 in forum: Hypersensitivity and Intolerance Reactions
  10. lunarainbows
    Post

    Help for sound sensitivity

    I echo @JemPD - I found noise cancelling, in particular Bose noise cancelling (I have the Bose noise cancelling in-ear earbuds but some people...
    Post by: lunarainbows, Sep 30, 2023 in forum: Home adaptations, mobility and personal care
  11. lunarainbows
    Post

    Sewing and accessible sewing machines

    Yes, mine is computerised/digital too. It’s the first digital machine we’ve had and my mum much prefers it to the old non-digital sewing machines...
    Post by: lunarainbows, Sep 24, 2023 in forum: Home adaptations, mobility and personal care
  12. lunarainbows
    Post

    Sewing and accessible sewing machines

    I don’t lie down, my bed is a hospital/profiling bed so it can be put in any angle! I’m usually at a 60 degree angle I think! It makes a huge...
    Post by: lunarainbows, Sep 24, 2023 in forum: Home adaptations, mobility and personal care
  13. lunarainbows
    Post

    Sewing and accessible sewing machines

    I re-started sewing a few days ago too! We recently got a sewing machine with a Stop-start button, which means I can sew in bed without having to...
    Post by: lunarainbows, Sep 23, 2023 in forum: Home adaptations, mobility and personal care
  14. lunarainbows
    Post

    IBS-like symptoms near -constant for about 3 months

    Do you know which modifications to her diet have helped? I’ve been diagnosed with microscopic colitis, and from what I’ve read collagenous colitis...
    Post by: lunarainbows, Sep 20, 2023 in forum: Gastrointestinal and Urinary
  15. lunarainbows
    Post

    Petition: Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings

    Absolutely, there is no reason whatsoever for the trust to deny her these lifesaving accommodations. It is wilful ignorance and cruelty. All...
    Post by: lunarainbows, Sep 16, 2023 in forum: Petitions
  16. lunarainbows
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Oh no, this is so sad! :( He was so lovely, understanding and kind and really smart. That’s probably why they recently changed my usual doctor...
    Post by: lunarainbows, Sep 3, 2023 in forum: UK clinics and doctors
  17. lunarainbows
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    He is the kindest and most approachable doctor I’ve ever met. One of my other friends (also a complex patient with other conditions), said the...
    Post by: lunarainbows, Sep 3, 2023 in forum: UK clinics and doctors
  18. lunarainbows
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    In my experience Dr Gall (and Prof Lobo, who he works with) are some of the nicest doctors when it comes to ME & LC. They do believe in your...
    Post by: lunarainbows, Sep 2, 2023 in forum: UK clinics and doctors
  19. lunarainbows
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Yeah, have seen two of them, will PM you soon.
    Post by: lunarainbows, Sep 2, 2023 in forum: UK clinics and doctors
  20. lunarainbows
    Post

    UK doctors knowledgeable in ME/CFS?

    She was working at the ME trust a while ago, I spoke to her then. She was really kind and understanding and wrote an amazing letter advocating for...
    Post by: lunarainbows, Aug 23, 2023 in forum: UK clinics and doctors
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