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  1. jamari
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    A really good point about the neurons.
    Post by: jamari, Dec 1, 2021 in forum: ME/CFS research news
  2. jamari
    Post

    Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards

    Something that's been on my mind is how a trapped cell would be passed down during mitosis? Would the daughter cells inherit this problem? As we...
    Post by: jamari, Nov 30, 2021 in forum: ME/CFS research news
  3. jamari
    Post

    Corticosteroids, hydrocortisone, prednisone for ME/CFS

    I had the worst crash of my life when on prednisolone. But!!! I was also prescribed an extremely high dose of calcium supplementation while on...
    Post by: jamari, Sep 18, 2021 in forum: Drug and supplement treatments
  4. jamari
    Post

    IDO2 gene mutations - SNPs

    Interesting.. I did read that TPH2 was statistically significant in development of ME/CFS. TPH1/TPH2 is responsible for || Trypophan + TPH1/TPH2...
    Post by: jamari, Aug 31, 2021 in forum: ME/CFS research
  5. jamari
    Post

    Articles on NICE guidelines 'pause'

    "The draft guidelines were predicted to stop the use of GET and limit the use of CBT which have served most chronic fatigue syndrome/ME clinicians...
    Post by: jamari, Aug 18, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  6. jamari
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Merged thread Coronavirus: Twelve weeks on I can't kick Covid exhaustion Little do people know, that this 12 weeks could turn into 12 years.......
    Post by: jamari, Jun 16, 2020 in forum: Long Covid news
  7. jamari
    Post

    OMF to launch clinical trials on Mestinon & Kynurenine, post-COVID19 study

    My guess is that they are supplementing it based on the theory that kynurenine would be low in patients if Dr Phair's IDO2 metabolic trap...
    Post by: jamari, May 2, 2020 in forum: ME/CFS research news
  8. jamari
    Post

    MS research versus ME/CFS research

    I think it's fair to say that funding tends to correlate with disease mortality rates.
    Post by: jamari, Sep 17, 2019 in forum: General ME/CFS news
  9. jamari
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    I think it's very important that researchers are careful about who they use to sample. They have to be 100% certain they have the disease.....
    Post by: jamari, Sep 5, 2019 in forum: ME/CFS research news
  10. jamari
    Post

    Is ME a metabolic problem or a signalling problem?

    It's an interesting idea and I heard Ron Davies talking about this. There are alot of patients who are fed by tube or w.e as they're too sick to...
    Post by: jamari, Aug 28, 2019 in forum: ME/CFS research news
  11. jamari
    Post

    Drug given to enhance MRI images under scrutiny over side-effects

    I had a gadolinium contrast for an MRI in about... 2014 (ish). I instantly had an allergic reaction and they had to abandon the test and take me...
    Post by: jamari, Aug 18, 2019 in forum: Other health news and research
  12. jamari
    Post

    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    Yeah, looks that way. I thought the below comment was quite vocal. "After a diagnosis of CFS/ME is made using the MES test, patients are...
    Post by: jamari, Aug 7, 2019 in forum: ME/CFS research
  13. jamari
    Post

    Can You Reshape Your Brain's Response To Pain? NPR article, June 10, 2019

    I'm being pedantic but the title "Can you reshape your brain's response to pain?" doesn't make sense. The brain doesn't respond to pain, it...
    Post by: jamari, Aug 6, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. jamari
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    All patients that Robert Phair examined had either a damaging mutiation in IDO2 (typtophan pathway) or tyrosine hydroxylase (tyrosine pathway)....
    Post by: jamari, Jun 11, 2019 in forum: ME/CFS research news
  15. jamari
    Post

    Action for M.E.'s big survey, 2019

    Yes!! that and some crutches. :thumbup:
    Post by: jamari, May 2, 2019 in forum: General ME/CFS news
  16. jamari
    Post

    Can we call ME/CFS a disease?

    I'm unsure if there is an official criteria but I found this definition: With the current evidence for ME/CFS, I can see the justification to...
    Post by: jamari, May 1, 2019 in forum: General Advocacy Discussions
  17. jamari
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Not sure if it's been shared or seen by any of you, but Ron Davis has summarized where they are, regarding the topic of this thread. [MEDIA]
    Post by: jamari, May 1, 2019 in forum: ME/CFS research
  18. jamari
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Well done to all and a massive thanks to those that donated.
    Post by: jamari, May 1, 2019 in forum: Fundraising
  19. jamari
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Definitely not. Some things are just worth it. :emoji_sweat_smile::emoji_sweat_smile:
    Post by: jamari, Apr 30, 2019 in forum: ME/CFS research
  20. jamari
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Simon Wessely, a psychiatrist at King’s College London’s Institute of Psychiatry, said "The (first) issue is, can any biomarker distinguish CFS...
    Post by: jamari, Apr 30, 2019 in forum: ME/CFS research
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