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    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Maybe the Gibson enquiry needs to be revisited. It took place when attitudes to ME were very psychological in nature. It would be really interesting to see it done again now that all those theories have been overturned.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Big section on bbc1 news now, including interviews with Sarah Boothby and Binita Kane
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    And another from ITV https://www.itv.com/news/westcountry/2024-08-09/woman-died-from-malnutrition-due-to-me-coroner-finds?fbclid=IwZXh0bgNhZW0CMTEAAR2dJc771LaJIdej7shzv6rV1MslHt-R8PrD1Gvr9I3eHpBkDcVJEftWzAs_aem_3HLAZ1eXXG30iZJ_GVRnkg
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Quite a nice coverage on channel 4 news just now. I have no link but I’m sure it will be available later.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I am not suggesting she doesn’t possess the skills. I think it is more that she had an adequate answer in that they thought it was a real illness. whereas if it had been one of us asking we would have seen more than that and asked again whether they thought physical etc. I think different...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Nearly all of the witnesses were asked if they believed ME was a physical or psychological illness. They all replied that they believed ME was a real illness. Some of them then went on to say there was no known aetiology. But none of them were then presented with the next question which...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Guardian article for today https://www.theguardian.com/society/article/2024/aug/01/hugs-were-too-painful-for-me-patient-before-she-died-mother-tells-exeter-inquest
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Sean O’Neil gave evidence. He had two statements to read in but was too emotional so the coroner read them. The first I had heard before as I think he used this as part of an article he had published recently. The second was critical of the medical establishment and their beliefs of the psych...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I asked them about this and they will not be made public. You can request them if you are a properly interested party. I got the impression that doesn’t include members of the public
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I missed the start of Sarah’s questioning but when I joined they were talking about the prescription feeds. I won’t go into detail as I wasn’t able to carry on taking the notes well enough. But there were some quotes which stood out: C - is it manifestation that things (body functions)go and...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    It had been referred to as an eating disorder ward in most cases through the inquest until Tory Riches (clinical matron in emergency dept) was questioned and she then tried to say that it was actually primarily an endocrine ward but as more eating disorder patients were put on it over time then...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Thank you so much @Nightsong . I have been listening every day and did take a lot of notes on the first two days but I then had to stop. Your summaries have kept everyone involved and informed and your stamina to do so much is inspiring.
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    An interesting article from PULSE (a GP publication ) “Behind the headlines: A case study in how the press can blame a blameless GP” Pulse examines the media coverage of the inquest of a woman with ME as headlines abound blaming her GP. Maya Dhillon looks at the case and questions why these...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    She seemed very sympathetic at the start but there were a few comments which led to a different thought process: - we suggested that she might try and wash her hair and clean her teeth tomorrow - she was managed to take water from the sponge swab that her mother was providing her with so her...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    I concur, that was my impression as well. Most of the witnesses when asked have not even paused to think about their answer - they come back straight away with answers that are very similar to each other in their wording. If they are questioned further they hedge around the answer and come back...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Correct with the same argument used for why they didn’t use it in hospital. His reasoning was that because Maeve was not able to wash or be washed very often they couldn’t maintain a sterile environment. This would be of paramount importance if putting a feeding tube in (not nasally) as the...
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    Thank you, it’s frustrating not to be able to plan for when to listen but so far I have managed to do most of it. I had to leave early yesterday so didn’t hear who was on today. So that’s really helpful - thanks again
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    Maeve Boothby O'Neill - articles about her life, death and inquest

    @dave30th i enjoyed seeing you on camera today but sorry you had to endure the harsh admonishment. As you are at the court in person are you given access to information such as the timetable for the enquiry? I had asked if this could be provided but they won’t send it out.
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