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  1. Ebb Tide
    Post

    Trial Report Functional Limitations and Exercise Intolerance in Patients With Post-COVID Condition A Randomized Crossover Clinical Trial, 2024, Tryfonos et al

    @rvallee the PCC SF 36 PF score is 49.9, I think you've quoted the Physical role score below
    Post by: Ebb Tide, Apr 6, 2024 in forum: Long Covid research
  2. Ebb Tide
    Post

    Has anyone else here struggled with a persistent verruca?

    I'd never had one until after my 2017 relapse, not sure exactly when it appeared but started trying to treat it in 2019. At first I thought it was...
    Post by: Ebb Tide, Aug 26, 2023 in forum: Other specific illnesses
  3. Ebb Tide
    Post

    People with Long Covid and ME/CFS Exhibit Similarly Impaired Balance and Physical Capacity: A Case-Case-Control Study 2023, Hayes et al

    Interventions for balance (which happen for patients with stroke, head injury, other neuro, frail elderly for falls prevention etc.) would not be...
    Post by: Ebb Tide, Jul 25, 2023 in forum: Long Covid research
  4. Ebb Tide
    Post

    People with Long Covid and ME/CFS Exhibit Similarly Impaired Balance and Physical Capacity: A Case-Case-Control Study 2023, Hayes et al

    Given the correspondence addresses of the authors and one author's name this looks like it may be the same team....
    Post by: Ebb Tide, Jul 24, 2023 in forum: Long Covid research
  5. Ebb Tide
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    this isn't a transcript of the video, but a blog he wrote when the pre-print came out...
    Post by: Ebb Tide, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  6. Ebb Tide
    Post

    Long Covid in the media and social media 2023

    Is Dr Griffin getting hung up on the Pace Trial authors claims that CBT & GET were more effective than the Adaptive Pacing Arm(APT) of the trial,...
    Post by: Ebb Tide, Jul 11, 2023 in forum: Long Covid news
  7. Ebb Tide
    Post

    Postgraduate research job advert: Impaired selective attention as a cognitive and neurophysiological marker of ME/CFS, 2023, UK

    Thread on a previous paper from Leicester University. Lead author appears to have several other papers- will try and post later- need to get back...
    Post by: Ebb Tide, Jul 1, 2023 in forum: ME/CFS research news
  8. Ebb Tide
    Post

    Postgraduate research job advert: Impaired selective attention as a cognitive and neurophysiological marker of ME/CFS, 2023, UK

    I seem to remember that Leicester University published a couple of interesting papers of visual issues in ME a few years ago.
    Post by: Ebb Tide, Jul 1, 2023 in forum: ME/CFS research news
  9. Ebb Tide
    Post

    Clinical and Biomarker Profile Responses to Rehabilitation Treatment in Patients with Long COVID Characterized by Chronic Fatigue 2023, Binetti et al

    I was puzzling over this predicted 'percentage of metres' walked too. I think it may have come from an equation in the paper in reference no.27...
    Post by: Ebb Tide, Jun 29, 2023 in forum: Long Covid research
  10. Ebb Tide
    Post

    Preprint The Psychological Benefits of Forest Bathing in Individuals with Fibromyalgia and CFS/ME: A Pilot Study, 2023, Serrat et al

    We have this thread:...
    Post by: Ebb Tide, Jun 27, 2023 in forum: ME/CFS research
  11. Ebb Tide
    Post

    Cognitive functioning in POTS among different body positions: a prospective pilot study (POTSKog study), 2023, Maier et al

    Good to see sensible comments in the last paragraph of the discussion about the problems of interpreting scores on anxiety and depression...
    Post by: Ebb Tide, Jun 5, 2023 in forum: 'Conditions related to ME/CFS' news and research
  12. Ebb Tide
    Post

    Long Covid in the media and social media 2023

    Re BBC R4's News Quiz mentioned earlier in the thread, sufficient complaints to the Feedback programme on the same station sometimes forces...
    Post by: Ebb Tide, May 30, 2023 in forum: Long Covid news
  13. Ebb Tide
    Post

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    The Future Pensions Service has been in major overload because of the deadline for making voluntary NI payments for pre-2016 years which was meant...
    Post by: Ebb Tide, May 23, 2023 in forum: Work, Finances and Disability Insurance
  14. Ebb Tide
    Post

    UK: ME Association: Count ME In [survey]

    I got stuck as it asks whether you have a close relative or friend with ME, which I do, so said yes. Then asks if you have permission to fill it...
    Post by: Ebb Tide, May 23, 2023 in forum: Advocacy Projects and Campaigns
  15. Ebb Tide
    Post

    Cardiopulmonary, Functional, Cognitive and Mental Health Outcomes Post-COVID-19, 2023, O’Sullivan et al

    Interesting looking at the 6MWT scores and remembering the post treatment scores in the PACE trial which were a group with similar age profile....
    Post by: Ebb Tide, May 5, 2023 in forum: Long Covid research
  16. Ebb Tide
    Post

    Hello! Fitness tracker recommendations?

    I've been using a polar watch & separate HR monitor chest strap for about 5 years. I fitted POTS criteria in 2018 and because of that was never...
    Post by: Ebb Tide, May 4, 2023 in forum: Monitoring and pacing
  17. Ebb Tide
    Post

    Hello! Fitness tracker recommendations?

    This paper does have a list of some commonly used monitors by pwME:...
    Post by: Ebb Tide, May 3, 2023 in forum: Monitoring and pacing
  18. Ebb Tide
    Post

    10 easy ways to reduce your fatigue fast! Times article about Katrina Antram

    The Institute for Optimum Nutrition was founded by Patrick Holford: https://en.wikipedia.org/wiki/Patrick_Holford
    Post by: Ebb Tide, Apr 2, 2023 in forum: General ME/CFS news
  19. Ebb Tide
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Yes, email is dated yesterday evening, but didn't check my mail until this morning.
    Post by: Ebb Tide, Mar 15, 2023 in forum: Recruitment into current ME/CFS research studies
  20. Ebb Tide
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Just heard today that they were able to extract my DNA from my sample. It was posted 17th Oct, it appeared to have gone astray, but turned up end...
    Post by: Ebb Tide, Mar 15, 2023 in forum: Recruitment into current ME/CFS research studies
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