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Latest update from the NHMRC: https://www.nhmrc.gov.au/health-advice/me-cfs/governance/guideline-development-committee/summary-meeting-november2025 The National Health and Medical Research Council’s (NHMRC) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Guideline Development...

The NHMRC ME/CFS Clinical Guideline Development Committee recently held its second meeting. This session was a training workshop to help committee members learn about the GRADE approach, a method used to assess the quality of research evidence. NHMRC uses this approach when developing all...

The NHMRC has now released a report summarising responses to the scoping survey: https://www.nhmrc.gov.au/about-us/publications/mecfs-scoping-survey-report#download

Arseneau runs the BC Centre for Long COVID, ME/CFS, & Fibromyalgia. They now enthusiastically endorse brain retraining and other quackery: As noted elsewhere on the forum, he's also the co-author of a rapid response in the BMJ which claims: Edit: there's more information about the clinic...

The notification appears to show up on the version of the article on the MJA site: https://www.mja.com.au/system/files/issues/cfs2_2.pdf

The guideline committee met for the first time. There's a very brief summary on the NHMRC website: https://www.nhmrc.gov.au/health-advice/me-cfs/guideline-development/guideline-development-committee/summary-meeting-august2025

For what it's worth, I developed insulin resistance when I got ME/CFS so my doctor wanted me to try Metformin. My blood glucose levels dropped slightly over the years while I was on Metformin. My ME/CFS worsened over that same period (although I'm sure there were many factors that could be...

This story was reported on local news yesterday: More information on the study: I had a quick look to see if the study mentioned above had been discussed on S4ME, but only came across this study involving Grubor-Bauk. Edit: perhaps it is this one: Long-term perturbation of the peripheral...

Pete McCluskey, an Australian ME/CFS advocate appeared on the "Conditional Release Program" podcast. The podcast is run by prominent journalist "Jack the Insider". Episode 187 - The Pain of ME/CFS I am too unwell to listen to it at the moment so I'll copy a summary from Emerge:

An excellent statement from some of the participants on SBS Insight's Invisible Illness program mentioned above: (More at the link)

Another potential concern: Professor Tammy Hoffman (Deputy chair) Leads the Centre for Evidence-Informed Health Decisions in the Institute of Evidence-Based Healthcare at Bond University, which is primarily focused on helping people make informed decisions about health Research aims to closely...

Further news on the SBS Insight program “Invisible Illness” mentioned above:

Another person with severe ME/CFS is being threatened with forced psychiatric hospitalisation in Denmark. There is a petition here. Petition thread here:Petition: 2025 Denmark: Protection of woman with very severe ME/CFS, Line

Copied post Another person with severe ME/CFS is being threatened with forced psychiatric hospitalisation in Denmark. There is a petition here.

An article about medical gaslighting and misogyny in Australia. Several people with ME/CFS are interviewed:

It looks like the NHMRC is recruiting for the Guideline Development Group for the proposed new ME/CFS guidelines. They have asked the RACP to nominate members of the college. The "structured rehabilitation relevant to ME/CFS" criterion seems problematic to me given there's no evidence that...

Andrew Lloyd's post-covid study is currently recruiting. I believe it was funded by the Medical Research Future Fund (MRFF). I got a recruitment text via my GP clinic. I note that the criteria say: "We will exclude anyone with past or current prolonged post-viral symptoms."

Some decades ago, a gastroenterologist (who is a bit of a maverick) prescribed it for me after a colonoscopy showed mild inflammation and, subsequently, a parasite infection. I was mainly complaining of nausea and cramping. He claimed it would help mainly with nausea I think. It didn't have any...