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  1. ProudActivist
    Post

    Death Studies: Risk factors for suicide in chronic fatigue syndrome - 2020 - Johnson, Jason et al

    We do need this kind of information. I am glad they have looked at it. I was surprised at the conclusion that pain wasn’t a factor that...
    Post by: ProudActivist, Jun 17, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. ProudActivist
    Post

    Death Studies: Risk factors for suicide in chronic fatigue syndrome - 2020 - Johnson, Jason et al

    Is it available for free? I can’t see how to read the full article without paying. it’s important work and I am glad they have published it. We...
    Post by: ProudActivist, Jun 14, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  3. ProudActivist
    Post

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    Has anyone else received a text from the NHS about social prescribing? It has a link to this video [MEDIA] and asks me if I want “social or...
    Post by: ProudActivist, May 20, 2020 in forum: UK clinics and doctors
  4. ProudActivist
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Well, I had to post something to my GP surgery so I scribbled a quick note on it for my GP about the CPD on ME/CFS. You never know...
    Post by: ProudActivist, May 15, 2020 in forum: Training courses
  5. ProudActivist
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Thanks. That is a useful thing the MEA are doing. I hope their ME essential magazine reflects people like me and covers some of the complex issues...
    Post by: ProudActivist, May 14, 2020 in forum: Training courses
  6. ProudActivist
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Yes I completely agree. It needs to be highlighted to them all somehow, but until NICE guidelines change I can’t see many bothering, and that...
    Post by: ProudActivist, May 12, 2020 in forum: Training courses
  7. ProudActivist
    Post

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    I would like to share it with my GP and surgery but am hesitant as I tried to share a POTS information session before and got quite a hostile...
    Post by: ProudActivist, May 12, 2020 in forum: Training courses
  8. ProudActivist
    Post

    A Life Hidden - Blog posts by Naomi Whittingham

    Should we invite Miranda to the forum? She’s really speaking out about chronic illness at the moment, including ME. She has not disclosed why as...
    Post by: ProudActivist, May 3, 2020 in forum: General ME/CFS news
  9. ProudActivist
    Post

    Question: Coronavirus & home sewn masks?

    fair enough. For my partner going into a shop it’s just brief and may be better than cotton fabric alone?
    Post by: ProudActivist, Apr 1, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  10. ProudActivist
    Post

    Question: Coronavirus & home sewn masks?

    If it was freshly applied the fumes would be inhaled and kill the virus? It says in the article that it can kill the virus in 30 seconds in the...
    Post by: ProudActivist, Apr 1, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  11. ProudActivist
    Post

    Question: Coronavirus & home sewn masks?

    Does anyone know how make an iodine infused “filter” layer? It was mentioned somewhere on the forum that the Chinese recommended (I think) it for...
    Post by: ProudActivist, Apr 1, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  12. ProudActivist
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    What is the Sheffield council helpline number?
    Post by: ProudActivist, Mar 29, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  13. ProudActivist
    Post

    Coronavirus - worldwide spread and control

    1.5 million people in the UK considered “vulnerable” are about to get a letter telling them to isolate. I wonder how many people with ME will get...
    Post by: ProudActivist, Mar 23, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  14. ProudActivist
    Post

    Trial By Error: What Now?

    I agree. I don’t think the cognitive issues are taken account of, especially in disability/benefits assessments. For PIP (UK) the assessors...
    Post by: ProudActivist, Mar 20, 2020 in forum: General ME/CFS news
  15. ProudActivist
    Post

    Trial By Error: What Now?

    Glad to hear you will continue fighting with us David, I am glad you are at home and hope you & yours stay well. As you say, there is always stuff...
    Post by: ProudActivist, Mar 19, 2020 in forum: General ME/CFS news
  16. ProudActivist
    Post

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    The panel you have got there is really great. I really hope people do turn out for it and that corona virus doesn’t get in the way.
    Post by: ProudActivist, Mar 5, 2020 in forum: Advocacy Projects and Campaigns
  17. ProudActivist
    Post

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    I also agree about Voices from the Shadows. Unrest was good for awareness raising but from an educational point of view and given Jen’s journey...
    Post by: ProudActivist, Mar 5, 2020 in forum: Advocacy Projects and Campaigns
  18. ProudActivist
    Post

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    A while ago there was an online talk for one hour which counted for CPD points on POTS and ME. [ATTACH] I shared it with the practice manager...
    Post by: ProudActivist, Mar 5, 2020 in forum: Advocacy Projects and Campaigns
  19. ProudActivist
    Post

    From IBS to ME – The dysbiotic march hypothesis, 2020, Berstad

    I did get IBS pre viral trigger, but my mum was very much against excess antibiotics and I didn’t have many, and not at all when very young as far...
    Post by: ProudActivist, Mar 4, 2020 in forum: ME/CFS research
  20. ProudActivist
    Post

    Norway: Røysumtunet, a centre for severe ME patients

    And of course there are the severely ill people who are cared for by aging parents who do not know what will happen to them in the near future....
    Post by: ProudActivist, Mar 2, 2020 in forum: Other clinics and doctors
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