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I don't think calling something pseudoscience on this forum hinders discussion because people usually give the reasons it is considered pseudoscience - either no empirical evidence or a theoretical explanation that is not accepted by most scientists.

There is a new response to the BMJ article mostly from recovered patients in support of nervous system regulation. https://www.bmj.com/content/389/bmj.r977/rr-29

Garner discusses a bit about what he attributes his recovery to here: https://www.recoverynorway.org/2021/12/31/paul-garner-professor-recovery-norway-story-long-covid/

Unfortunately I am not able to read this paper indepth but I was wondering whether the mechanism suggested provides an explanation for delayed PEM?

Based on that theory ( which I do not think is correct) if you pushed through the symptoms initially you should see that there was no need to rest after all and the symptoms would just disappear. This is what Paul Garner says and what most of the brain retraining work entails.

Exercise (within reason) is recommended for mitochondrial disease and hEDS and doctors advise it, it's people with ME exercise is really unsafe for.

It's important to understand that no one really knows whether someone getting worse sympyoms after the LP is due to physical harm or not but the absolutely crucial point is that irrespective of this if someone's baseline is seriously lowered as a result of the LP and they no longer have enough...

Another article in the I Paper https://inews.co.uk/inews-lifestyle/20-somethings-20-diagnoses-overdiagnosis-3585705

I have only skimmed the book but at one stage close to but not at the end Strike is in hospital because of problems with his leg including muscle spasms and the doctor says the spasms could be psychogenic and asks him if he's been under stress recently. I don't know what the purpose of including...

I think this article may be related to this although I am not sure because it doesn't mention anything about vitamin B3, it is quite a scary article as it is so disconnected from reality...

Simon Wessely has a website with a range of papers he was involved in, some of which might be relevant to the history of the biopsychosocial model e.g. there is a 1990 paper called Old Wine in New Bottles about neurasthenia and ME https://simonwessely.com/papers-chronic-fatigue-syndrome/

Thanks for the helpful information @Hutan , did you find anything that helped with pulse pressure apart from the general things like pacing and time?

I have something like POTS diagnosed from standing up and I take a low dose beta blocker and lots of salt. I probably don't have small fibre neuropathy based on symptoms but I haven't had tests for it.

Thank you, my blood pressure is 93/74 today and I can't stand up much without feeling faint and feel very unwell sitting as well with chest tightness and general weakness and shakiness, so I thought that might be the cause as I have noticed a correlation in the past.

I think it means the difference between systolic and diastolic blood pressure being less than 25% of sysystolic as described below https://www.potsuk.org/low-pulse-pressure/

I was wondering if anybody has had narrow pulse pressure or found anything that helps with it? I am feeling really bad at present and I think this may be the reason. I was also wondering if it is something a GP would know about or not?

I think ME is a bad name anyway just because of the initials, for someone who hasn't heard of it before the first thing it suggests is the person is thinking too much of themselves as in me time or mememe

Is the virtual reward possibly what the participants theoretically won based on all the tasks while the actual reward is the payout selected from two random tasks? (I might be misunderstanding it)

I haven't watched any of this but I found these helpful in understanding the paper (apart from whatever Walitt is trying to say about a mismatch) https://www.nih.gov/news-events/nih-research-matters/insight-into-mechanisms-mecfs https://www.nature.com/articles/s41467-024-45107-3/figures/10