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  1. Theresa
    Post

    Has there ever been any evidence that health professionals are more represented among ME patients?

    Wessely makes a couple of references to evidence for this in his article "Old wine in new bottles" but I don't know what his references say, one...
    Post by: Theresa, Mar 16, 2024 in forum: Possible causes and predisposing factor discussion
  2. Theresa
    Post

    Dentistry; dental treatment

    This is what it says on the ME Association webpage: https://meassociation.org.uk/medical-matters/items/dental-white-amalgam-fillings-me-cfs/
    Post by: Theresa, Nov 8, 2023 in forum: Home adaptations, mobility and personal care
  3. Theresa
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    In the second paragraph they probably mean Leonard Jason rather than Jason Leonard?
    Post by: Theresa, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Theresa
    Post

    Gentle(st) stretching routine

    There might be some useful ideas in this file also.
    Post by: Theresa, Jun 19, 2023 in forum: Home adaptations, mobility and personal care
  5. Theresa
    Post

    Works of fiction where characters have ME/CFS

    There is a novel Falling through the World by Rachel Clarke published in 2012, I can't remember what I thought of it but it has positive reviews...
    Post by: Theresa, Oct 30, 2022 in forum: General ME/CFS discussion
  6. Theresa
    Post

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    The error is only in the abstract , the paper itself seems correct?
    Post by: Theresa, Sep 23, 2022 in forum: ME/CFS research
  7. Theresa
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think either a copy of the new UK NICE guidelines or even just a reference to an online link for them would be good.
    Post by: Theresa, Apr 8, 2022 in forum: General Advocacy Discussions
  8. Theresa
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Merged thread Could mitochondrial diseases cause delayed PEM? Hi, Sorry I don't know which area of the forum I should post this question in,...
    Post by: Theresa, Dec 10, 2021 in forum: Possible causes and predisposing factor discussion
  9. Theresa
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    I agree about therapists sometimes providing unhelpful ideas but there really isn't any such thing as an accountant handing back or losing their...
    Post by: Theresa, Nov 14, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Theresa
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I can't work out how to link it here but in the full text of the article a bit under the subheading "Therapists, techniques and principles in the...
    Post by: Theresa, May 11, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Theresa
    Post

    Diagnosis of mast cell activation syndrome: a global “consensus-2”, 2020, Afrin et al

    According to Wikipedia Afrin suggests that MCAS could cause spontaneous human combustion, presumably there is no such thing and that cannot be a...
    Post by: Theresa, May 1, 2020 in forum: Immune: Autoimmune and Mast Cell Disorders
  12. Theresa
    Post

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    One of the interviewees makes a good point about ME not being an invisible illness but that it is the lack of knowledge and acceptance making...
    Post by: Theresa, Feb 29, 2020 in forum: General ME/CFS news
  13. Theresa
    Post

    ME/CFS in UK medical textbooks (Psychiatry)

    Doctors are definitely too quick to diagnose sometimes or to assume psychological causes, however I think a diagnosis that says they don't know...
    Post by: Theresa, Jan 27, 2020 in forum: General ME/CFS news
  14. Theresa
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    At least it refers to a Canadian psychiatrist having a position on mass hysteria that is based on emotion and ignorance, I would guess this is...
    Post by: Theresa, Nov 29, 2019 in forum: Other health news and research
  15. Theresa
    Post

    Complex Regional Pain Syndrome (CRPS), what to do?

    Apologies, yes, it is the wrong URL, this is the one I meant to post: Complex regional pain syndrome and functional neurological disorders –...
    Post by: Theresa, Nov 12, 2019 in forum: Other health news and research
  16. Theresa
    Post

    Complex Regional Pain Syndrome (CRPS), what to do?

    This is a link to an article discussing a potential overlap between CRPS and FND, I don't know enough about either to judge whether the article is...
    Post by: Theresa, Nov 12, 2019 in forum: Other health news and research
  17. Theresa
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    I haven't been able to watch it apart from the beginning, but I don't think @Brian Hughes is correct to say PACE was based on a psychiatric...
    Post by: Theresa, Oct 25, 2019 in forum: Advocacy Projects and Campaigns
  18. Theresa
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Here is an article on the same topic, but with a non-dualistic approach - "The neurology of the Cuban "sonic attacks"...
    Post by: Theresa, Jul 7, 2019 in forum: Other health news and research
  19. Theresa
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    This paper contains an interesting discussion of the evidence/lack of evidence for hEDS, POTS ,MCAS and the links between them...
    Post by: Theresa, Jul 5, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  20. Theresa
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    If there is no real evidence that hypermobility EDS is a valid diagnosis, which I accept there doesn't appear to be, I can't help wondering why...
    Post by: Theresa, Jun 8, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
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