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  1. Cheesus
    Post

    Suppressed immune and metabolic responses to intestinal damage-associated microbial translocation in [ME/CFS], 2023, Uhde, Vernon et al.

    I don't think it's fair to call it a myth - there is definitely such a thing as increased gut permeability and microbial translocation. It's just...
    Post by: Cheesus, Sep 8, 2023 in forum: ME/CFS research
  2. Cheesus
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    They've changed the headline but still refer to it as "chronic fatigue" several times in the body of the article.
    Post by: Cheesus, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  3. Cheesus
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Thanks Andy. I updated the link (again).
    Post by: Cheesus, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Cheesus
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    I've already written to the Guardian to ask them to at least get the name right. I've never heard of a condition called "chronic fatigue".
    Post by: Cheesus, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  5. Cheesus
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Merged The Guardian: Chronic fatigue guidance discouraging exercise is flawed, say researchers New guidance for doctors discouraging them from...
    Post by: Cheesus, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  6. Cheesus
    Post

    Causal Effects between Gut Microbiome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Two-Sample Mendelian Randomization Study, 2023,Gang He

    Can't believe what I am reading here. I posted this thread way back in 2016 on Phoenix Rising: Paraprevotella: the cause of my atypical ME? In...
    Post by: Cheesus, Jun 24, 2023 in forum: ME/CFS research
  7. Cheesus
    Post

    ‘Welcome to my world’: a thematic analysis of the lived experiences of people with [ME] during the UK COVID-19 lockdown, 2023, Portch et al

    I took part in this study and I see one of my quotes made it into the paper! Pleased to see it finally published.
    Post by: Cheesus, Jun 6, 2023 in forum: ME/CFS research
  8. Cheesus
    Post

    Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients (Thapaliya et al, 2023)

    When I am in PEM I often wake up gasping for air as if I had stopped breathing during my sleep. I did a sleep apnea test but found nothing.
    Post by: Cheesus, Apr 16, 2023 in forum: ME/CFS research
  9. Cheesus
    Post

    Urine Metabolomics Exposes Anomalous Recovery after Maximal Exertion in Female ME/CFS Patients 2023, Glass, Hanson et al

    I am also drawing deep from that hopium pipe.
    Post by: Cheesus, Feb 14, 2023 in forum: ME/CFS research
  10. Cheesus
    Post

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    Might this depend on how well defined the cohort is? If we're dealing with several related yet discrete diseases, or if some subset is...
    Post by: Cheesus, Sep 12, 2022 in forum: ME/CFS research
  11. Cheesus
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    His successor won't be any better in that regard. I guarantee it.
    Post by: Cheesus, Jul 5, 2022 in forum: General ME/CFS news
  12. Cheesus
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I don't want to give anyone nightmares, but if Johnson doesn't go straight away we might end up with Nadine Dorries as health sec.
    Post by: Cheesus, Jul 5, 2022 in forum: General ME/CFS news
  13. Cheesus
    Post

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Javid has just resigned. Literally anyone else in government and I would have been delighted, but I am devastated. [MEDIA]
    Post by: Cheesus, Jul 5, 2022 in forum: General ME/CFS news
  14. Cheesus
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    [MEDIA]
    Post by: Cheesus, May 27, 2022 in forum: News from organisations
  15. Cheesus
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Sometimes progress feels glacial, but looking back, I think it's safe to say that we've made major progress as a community over the past decade,...
    Post by: Cheesus, May 25, 2022 in forum: News from organisations
  16. Cheesus
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    This happened yesterday. Do we have any news? I can't find anything.
    Post by: Cheesus, May 20, 2022 in forum: ME/CFS research news
  17. Cheesus
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I wish I hadn't read that article. My expectations are now sky high and I'm desperately trying to quash my hope because I cannot face the...
    Post by: Cheesus, May 7, 2022 in forum: ME/CFS research news
  18. Cheesus
    Post

    Should PwME be medically treated as 'high-risk' Covid patients?

    I finally asked my GP about this. He said it would not be possible and that he could not even ask a consultant at the hospital to prescribe it....
    Post by: Cheesus, Mar 6, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Cheesus
    Post

    Should PwME be medically treated as 'high-risk' Covid patients?

    I have been thinking about this for the past few days too. I plan to ask my GP about it when next we speak. He got me the vaccine pretty early...
    Post by: Cheesus, Feb 16, 2022 in forum: Epidemics (including Covid-19, not Long Covid)
  20. Cheesus
    Post

    Well-known, famous people with Covid-19 and Long Covid

    I genuinely thought he was going to topple off the podium. He did NOT look good. I hope he can bounce back because he looked a bit wobbly at the...
    Post by: Cheesus, Aug 2, 2021 in forum: Long Covid news
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