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  1. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    I'm hoping you all can see that it would take days to respond to these many comments. I will make two central points, then I have to focus on...
    Post by: Diane O'Leary, Sep 7, 2020 in forum: Diagnostic Criteria and Naming Discussions
  2. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    I appreciate all the discussion, though I can't possibly answer all these small points. Maybe it's helpful for me to say that I understand why...
    Post by: Diane O'Leary, Sep 6, 2020 in forum: Diagnostic Criteria and Naming Discussions
  3. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    1. I am not proposing that any terms get "repurposed". Not going to say that again. I'm just reporting on usage among the med professionals who...
    Post by: Diane O'Leary, Sep 5, 2020 in forum: Diagnostic Criteria and Naming Discussions
  4. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    Yes, very articulate and clear. And I completely agree. Tons of patients are getting the CFS diagnosis still, and most don't have the energy to...
    Post by: Diane O'Leary, Sep 5, 2020 in forum: Diagnostic Criteria and Naming Discussions
  5. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    Willow, the movement completely agrees with you. That is the point of it. The movement says Wessely and Sharpe were wrong and have done...
    Post by: Diane O'Leary, Sep 5, 2020 in forum: Diagnostic Criteria and Naming Discussions
  6. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    This is exactly the problem, I think - that so many in such a powerful group think the global change in professional attitudes toward ME is...
    Post by: Diane O'Leary, Sep 5, 2020 in forum: Diagnostic Criteria and Naming Discussions
  7. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    I'm still unclear what bearing this has on the movement initiated by the IOM, NIH and AHRQ reports. Nothing about the coding system changes the...
    Post by: Diane O'Leary, Sep 4, 2020 in forum: Diagnostic Criteria and Naming Discussions
  8. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    As always, your knowledge of coding far exceeds mine, Suzy, and I actually don't have any arguments against any of the points you've been making....
    Post by: Diane O'Leary, Sep 3, 2020 in forum: Diagnostic Criteria and Naming Discussions
  9. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    Suzie can you clarify the purpose of these efforts? Wouldn't it be good for ME patients if all the clinicians stopped using the term CFS? This...
    Post by: Diane O'Leary, Sep 3, 2020 in forum: Diagnostic Criteria and Naming Discussions
  10. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    That's a great point, though I haven't actually said it's valid. Nothing in the BMJ letter says or implies that, though I do appreciate that it's...
    Post by: Diane O'Leary, Aug 28, 2020 in forum: Diagnostic Criteria and Naming Discussions
  11. Diane O'Leary
    Post

    Diagnosis of ME and the use of the labels ME and CFS.

    Sorry I'm not following your reasoning. Seems like you're saying that because people have been conflating the disease with a psych condition for...
    Post by: Diane O'Leary, Aug 28, 2020 in forum: Diagnostic Criteria and Naming Discussions
  12. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Ok, I understand your point. And you're right - if the core BSS construct is the same as Fink BDS, then it's a bad idea to accept it. I think...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  13. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I don’t think Rosendal’s picture is objective. She has a strong investment in characterizing things in a way that’s favorable to BDS. And there is...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  14. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    The core construct of BSS is essentially the same as BDD. Then BDS criteria are considered separately, as an potential addition. WHO studies...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  15. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thanks for the clarification. (That Creed lecture by Fink is a monstrosity!) Yes, ICD-11-PHC is basically a primary care mental health manual, but...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  16. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Did you see my proposal to reject BDD? Yes of course I agree that we should advocate against anything that’s unproductive for the chronically ill...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  17. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I understand, Suzy, though I hope you know I played no role in those actions. I continue to be grateful for your work, which has taught me so much.
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  18. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Oh I do want to say that your work pointing out White’s errors is just marvelous, Suzy. Thanks for exposing those confusions!
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  19. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    I’m not sure I’m understanding your point Suzy. At the time that info sheet was written, BDD was going to be implemented, so there was little...
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
  20. Diane O'Leary
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    Here’s a link to my proposal to reject BDD. https://docs.wixstatic.com/ugd/23f4ba_9301dfea693f4df190b656a48886cbcd.pdf
    Post by: Diane O'Leary, Sep 1, 2019 in forum: Disease coding
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