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How will their 'Template Specification' affect individual Health Authorities that are already going ahead and putting out / accepting tenders?

@Suffolkres what a awful drama What would be the major differences between their idea of a clinic specification and the one your group had produced.

Thank you @hotblack. That looks very useful. My ICB came back to say that they had no contract with Suvera and it wasn't being done through them. They said in our area it's individual GP surgeries. No reply from mine. If i have the energy i will write a formal letter. As i remember the...

For an extended family member (who lived abroad) it was becoming intolerant to gluten, then a series of chest infections. Everyone is going to be different i guess and with other medical conditions. She became bedbound more frequently with asthma, bronchitis and pneumonia. Every time she was...

That's interesting. Thank you. We have sleep apnea on my family. An observation has been it's those of us with a 'small' face type and a small jaw.

I have done this by phone and email. No response to my request. Tried my local health authority as well. No reply as yet. Had a call from the company on Friday. They had my personal number plus other information about me. They can access my medical records he said. I had previously completed...

Received a text message out of the blue on my mobile phone from my GP clinic along the lines of "as a patient with asthma we have referred you to our new online clinic who will support your care". Then a link to a patients portal to register. The company is called Suvera...

I use a lighter form of @Binkie4's Lymphpress plus had lymph massage and used compression clothing over decades. Never made any positive difference to my ME.

Much worse regardless of how much sleep I get. Sometimes after a disturbed night I actually feel better in the morning but it depends on what the disurbance was. As an example a car or house alarm or a loud party makes me feel worse. This morning feeling though is there in other members of my...

I have been seeing discussions on the Lipodema Facebook groups so following reports on these drugs. Thank you @Binkie4 for posting

Mike. Thank you. Will give it some thought. My husband is a runner and really admires you.

I had a closed head injury after a road traffic accident. Knocked out. Diagnosed with concussion. My PEM wasn't any different. I did have very different symptoms such as new problems reading. It might not be the same for those of us with existing PEM or a brain injury in a particular place.

There were UK and Australian clinics drugging various patients https://jec.org.au/impact/our-record/chelmsford-deep-sleep-therapy-exposing-systemic-failings-that-denied-justice/ https://en.wikipedia.org/wiki/William_Sargant This doctor was 'treating' ME patients and tried to get me into his...

Sorry to hear about Mr B Binkie4. Hope the private appointment can provide some answers. My other-half is due another Covid and a flu shot shortly. I did receive an invitation to both but due to the effects of my one and only Covid shot I don't feel as if I can risk it. The head pains and...

When I read the Guardian article I was expecting an ending with a full recovery. Was gutted to read that it was only 'hope' that they had after all the expenditure etc. I felt sick in the stomach having been sold 'hope' so many times myself. The poor family.

Something I noticed with my own undiagnosed but suspected ADHD is that the constant chatter in my mind switches off if I enter a physically exhausting post exertional period. I then enter what I call 'brain death' where i simply cannot think and the fog is dampening all my thoughts. It is calm...

Very little difference in my day to day outside activities even when displayed prominently. I don't go out very much but none of my local shops (even branches of larger chains) or transport providers treat me any differently. It has some use at some airports but it isn't predictable even at...

Part of 'the team'

I'm not sure if my experience will be useful as it was a different operation. I had a couple for breast cancer. My previous experience was varied. Both local and general anaesthetic for wisdom teeth, lump, pre-cancerous condition, endometriosis, etc. These were all disasters resulting in long...

I was at University when I got ME in the 1980s. They made no attempt at all to help or accommodate me.