Do you have any particular group in mind? CFS wasn't invented 40 years ago and the ME groups seemed OK.
Dania, Can you please tell me which paper this is from? "Other studies have also linked CFS with stigma and other casual attributions, such as...
I was thinking along the same lines after a visit to the doctor recently. One factor i think is that they don't understand PEM. They are...
It does put a bit of a spin on the tired idea that it is patients that are the impediment to researchers wanting to get involved. Imagine being...
It's more of 'the bastards don't want to get better' theme https://implementationscience.biomedcentral.com/articles/10.1186/1748-5908-6-132
If it was really just down to keeping a job or having a drink in the pub why not just stick to a diagnosis of 'conversion disorder' ? This would...
Certainly not. On the Long Covid groups there appears to be a genuine group of new and confused people diagnosed with FND. Also the POTS group....
I would agree with that to an extent. On the Facebook groups I belong to there are FND patients who suddenly appear from nowhere and post...
I am seeing similar reactions on Facebook groups from people diagnosed with Candida, heavy metal poisoning and any number of alternative ideas for...
I feel better Arvo the more you explain it and I understand the full picture. But then I am not in the USA. Thank you. Could it be possible that...
I came across the Listen project again a couple of times when it was mentioned on a LC Facebook group. First mention was someone at a clinic being...
Where would a population of influenza positive controls come from? I have never been given a formal test for influenza. Even in Queensland.
Is this in the print version or just online?
I found that the high wore off after about 3-4 weeks of Pred at 25 mg per day. I returned to my 'normal' level of ME functioning. It was very nice...
I have been working through this and the other threads and most of my questions have already been followed up. Thank you all. My last one is...
Mike, thank you. What a wonderful achievement. Will keep an eye out for an Albanian contact.
Thank you Physios with ME. This is very useful.
I have tried IVIG and Imunovir. Neither had any long term benefits that I could see. The Imunovir did seem to have a good effect on my swollen...
I wonder how many of them developed OI or POTs and if so, for how long? It's something I was told when seeing Cardiologists re: POTS or low BP....
One advantage of a TV drama is that we don't seem to need to apply 'balance' as per a documentary or a news item. There are plenty of people with...
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