I have heard from one IAG member who said they wanted to clarify something regarding the confidentiality rules (there is no NDA). They got one...
Am off on holiday for a couple of weeks tomorrow, but have made a note to explore this when I get back. I also contacted Karl Morton today on...
Interesting! The authors are supposed to respond to comments. They didn't bother with Michiel Tack's well referenced comment in 2020 (a Cochrane...
I have assembled all the correspondence with Cochrane and others since I first submitted the complaint about Karla Soares-Weiser in March 2023....
POTS medications are the ones mentioned by the James Lind Alliance, so perhaps a 2x2 factorial placebo controlled trial with ivabradine and...
I finally heard from Wiley today after filling in an online form reiterating what I'd said in my emails. I will supply the correspondence to them...
I agree that testing potentially dangerous drugs that have no plausible theory behind them isn't a great idea. But if drugs are being trialled...
So useful -thank you!
I filled in a form to contact him when I found out he's got one of these new roles of UK Parliament Thematic Research Lead for Health...
That's interesting. I would propose to set up a democratic process of some kind to create a shortlist of potential medications which could then...
I remembered wrongly...it was a trial of LDN for Long Covid I was alerted to, NOT Ampligen for ME. The researcher was Louis Nacul, who was...
yes, someone told me there was an ampligen trial planned, or even underway, but there were issues with supply of it. I wrote to the lead...
I thought Ampligen would be a possibility
The only reason I went for trialling medications was firstly that it hasn't been done properly in the past. LIFT seems to be a good template for...
Do you think it would help with a funding application to explicitly acknowledge that it is copying from LIFT, but maybe add in the commitment to...
Posts discussing trial methodology and possible drugs to trial have been moved from a thread about a specific trial as they were taking the thread...
As I haven't heard back from Wiley, I did a chasing message yesterday (29 July 2024) Dear Wiley Publications Ethics Team (cc COPE, Deborah...
My latest gambit is to try complaining to Wiley (Cochrane's publisher) who had a research integrity guru called Chris Graf who wrote about the...
Ideally yes. However, I think prior stated views that the previous review was very badly done and biased and should be withdrawn would be...
Giving expert testimony not the same as writing a Cochrane review
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