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Did antihistanines for LC make any headway?

Worth following Mayo. Tulane and Columbia . Brian Fallon worth a read. German orthodoxy is sceptical about e.g Eli and Ispot but have no problem with the terms chronische Neuroborreliose or Borreliose mit chronischem Verlauf (course). Terms used in Aertzteblatt. I asked AI if AB was about the...

Wonder if MCAS will go the same way as "encephalomyelitis"

It gets us.

https://www.msn.com/en-gb/health/other/i-was-sick-for-20-years-and-got-no-answers-german-doctors-diagnosed-me-in-weeks/ar-AA1V00Pl?ocid=msedgntp&pc=U531&cvid=69778879d01943cb8415fbcd38ee4ecb&ei=31 Not ME but read what this woman had to go thru and listen to before she got a diagnosis.

This is exactly the problem and we have to be subtle. If BACME, BPS, whoever you view as quacks etc etc are going to take advantage anyway, then what is the harm in being splitters and saying "OK you 've got you lot who present as ME/claim to/are claimed to presnet thus, get on with them and do...

1) We assert your points es[ point 1) 2) Sb says "diagnosed by symptoms, I had those symptoms, I did LP etc, I no longer have the symptoms. I no longer have (or do) ME. Sb who has had full remission/cure after a biophysical approach might say similar. 3) We say "You would have got better...

I admit I don't know about my own diagnosis but a good dose of antibiotics ended a facial palsy and other nasties in 2014 some of which I had had years earlier. I don't want "there is no such thing as chronic Lyme fundies" on my case. Evolving science and they don't know my case like I do...

Yes that is what S had in mind from memory, but his engagement with the issue was dismissive and arrogant and to blame that on "fringe" nature of the medicine is inversion of blame. I agree that there were likely many cases of overdiagnosis and some people I know of spent a good deal on a ticket...

According to Michael Sharpe, as far as I remember, candida is a myth. My experience was that 10 yrs of calf soreness was abolished by a few tea spoonfuls of nystatin powder over 1-2 days from the Burghwood Allergy Clinic under the late Dr Johm Mansfield. Many orthodox physicians would see that...

My experience high morning cortisol but after 3 yrs zopiclone and probably a rebound, cold turkey phenomenon, which for some strange reason was worsened by MgEAP (very strange but I think the case) But low cortisol after heavy (spoonful) nystatin dose. I think Teitelbaum mentions low cortisol in...

Thanks interesting. Acute sarcoid is hypermetabolic and chronic is hypometabolic though it is a complex illness and forms and definitions vary. I get high on immune arousal -infection, sarcoid bout, heparin shots which in the view of some docs remove fibrin accumulated around an antigen and...

Possible that any babesians and bartonellans might end up with a diagnosis of CF or CFS/ME so worth getting them sorted and out of the way, so that the ME/CFS cohort is rendered more uniform. Should be formulated as "New differential among patients diagnosed with CF and neurological symptoms...

We have to be careful about language. They do not deny the physiological and will cite blushing as emotional/physiological, draw parallels with whatever disorder and accuse us of dualism etc. (They will not cite hiccoughs as it fits the agenda less well). "MUPS are physiological" is not a...

TNF alpha gene expression If gamma GE various cytokines have been abnormal in me but my case may have involved tick borne or other infections are sarcoidosis so uncertain as to applicability to ME. Only available privately . It would be interesting to know how those with ME diagnosis fare in...

Are there any measurable values to corroborate what you are saying? An analogy in weight lifting of 2day CPET for aerobic performance? Do you know if KW's work has been applied to exercise intolerance conditions such as McArdle's (glycogen storage), where there is an established pathway and...

The same objections to this can be made as were made re. the Japanese lady who improved on Asian herbs and pharma. "Natural recovery" etc. but if a person with ME diagnosis (presumably showing the necessary symptoms is in a state of "unnatural non recovery", then fair enough. Problem comes when...

To establish whether a therapy works whilst leaving the mechanism open to debate, but not to dismiss the possibility that a modality may work even if there is no scientific proof. I do not regret my nystatin on the ground that there was no trial/proof. I just, unlike some esp psychobehavioural...

Not all truths of medicine are scientifically proven so a useful therapy may not yet be deemed science based but it may be real in effect and have a sound but unknown mechanism. What was her condition? If inflammatory, many would say then not ME anyway, if sth to do with serotonin, possibly...

But any phrase will do in that world and it is the "Royal College of Psychological Medicine" and to be fair to the FNDer they are looking at brain waves nowadays. When I say medical I mean psychological, functional, biomedical, when some say medical they exclude psychological and FND, when...