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    Researcher Interactions Question collection thread for S4ME Q&A with Dr Heidi Nicholl of Emerge Australia, Sept 2019

    Will older people (65+), who are so often left out of research, be included? We tend to have long and complicated histories (eg 50 years+) which surely could be of some value to researchers to analyse, as well as insights gained from our longer term perspectives on the illness.
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    IMO, any new review MUST only include trials that undertake physical monitoring of patients' objective symptoms, before, during and after. This is vital for harm minimisation, and yet is the key element that is almost always ignored by the so-called 'biopsychosocial' practitioners. In...
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    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    I haven't read the emails yet, but I understood the choice of phrasing to mean that they would withdraw it ONLY because of the practical difficulty in that the authors couldn't all agree on the changes, therefore there was no conclusive document to publish; NOT because Cochrane was declaring...
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    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Yes, disease may be a more appropriate term, particularly since a Michael Sharpe and one other (IIRC) paper/(report?)recently summarised in the BMJ involved a strong assertion that ME/CFS is 'an illness without disease', which they define as a subjective experience of illness that is not...
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