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could you expand on this please? Who has told you this? What does it mean to have an nhs drive to "not keep on" long term chronic illness patients?

Are you talking about PIP or about UC?

Are you talking about PIP or about UC?

I phoned Scope disability helpline and they said that so long as you submit your UC claim before April, you will count as an existing claimant for the health element. I'm just confused though because this person on Reddit who seems incredibly knowledgeable about the benefit system is insisting...

Not PIP, specifically the daily living component of PIP. If this plan goes ahead.

Oh, i thought they may just leave people to fall into poverty, and say "well it's not our fault they're choosing not to work". I don't know if i overestimate how awful the DWP are, or underestimate it. (I saw a UC claimant saying on twitter that DWP had asked her to tell them what she had spent...

I just read this: (From https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-uc-changes/whats-changing-when ) This is incredibly disturbing?! If i understand correctly, then from 2028/2029 whether disabled-unable-to-work people get *any benefits at all* will hinge on...

I asked the same thing on reddit and someone who sounds like they know what they're talking about is saying that you'd need to get approved for the health/disability element of UC before April 2026, in order to count as an existing claimant and not get the reduced amount. (Look for the comment...

There's also a national citizens advice helpline but idk if its good.

Yeah, the 4 point pip thing has been abandoned, pending review at any rate. I don't think the article answers any of my questions though... unless I've missed something due to brain fog which is quite likely!

I'd be grateful if anyone can answer my questions about UC and PIP in a thread I made: https://www.s4me.info/threads/question-re-pip-and-uc.45905/

I have been putting off applying for benefits since my parents have been looking after me and the system seems very stressful. But know I need to get on it since my parents won't be here forever... And now that there are these changes coming up in April to UC and possibly in November to PIP (i...

I watched the video, and a couple of points stood out to me: 1) he says that they didn’t get blood samples from severe patients for this study, only mild and moderate, and some of the people in the ME patient group even described themselves as being in good health. 2) he says that because it’s...

Also on the insulin resistance, insulin resistance is common in PCOS (polycystic ovary syndrome), and PCOS is a common comorbodity with ME I think?

I don’t know whether this applies to urine tests, but my GP told me that non-repeated elevated liver markers in blood tests can simply be due to having taken a tablet recently such as a paracetamol or an antihistamine.

But wouldnt we know if liver disease was common in ME? Because then a lot of people with ME would be dying of liver disease or needing liver transplants.

I haven't the energy to read the whole thread... I read the abstract and I don't really understand. It mentions insulin resistance and liver disease. I wasn't under the impression that these were particularly common in PWME???

What's SequenceME? I have been fairly out of the loop.

NAD as in the coenzyme Nicotinamide adenine dinucleotide, or are you referring to a gene called NAD?

What is Precision Life and what is Beentjes, please?