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thanks for sharing. I’m sorry yours was accompanied by fear, that sounds awful. I personally did not notice any fear or hallucinations when I experienced it. It was more so that I woke up and thought “huh, my legs & (maybe arms?) are numb. must have slept on them weird”. No clue how long it...

My apologies, I accidentally thought they were the same thing. I did mean Suvorexant, I have never had Daridorexant.

I am reporting back here late, I was prescribed this briefly to see if I could improve my quality of sleep back in maybe 2023?? I only got one dispense so I only tried it maybe 30 times across a few months. I have skimmed this thread and I don’t think i’ve seen anyone else mention waking up and...

just stumbled on this, https://www.takeda.com/newsroom/newsreleases/2025/positive-results-phase-3-oveporexton-narcolepsy-type-1/ but not something i know much about, do you know much about this study? i’m only interested because I got some type of inability to move when waking up after suvorexant

I’ve read everyone’s descriptions and have thought about my own experiences but I can’t really identify if I do or don’t experience this?? it’s so common me lots of conditions but I can’t tell. I mean, i can’t think of any of my own experiences of it but it also seems strange that I wouldn’t...

speaking of athletes down south, I’ll have to check to make sure this hasn’t been posted already. But I noticed that at the last Olympics, in Paris, one of the Australian women’s surfing athletes had a history of me/cfs during her career but prior to the olympics. I’ll link her story...

I am hoping this is the right place to post this. The person I want to share isn’t necessarily a public figure in a famous sense, but their career is as an influencer/ content creator on social media. I feel weird sharing this about someone haha, but I haven’t seen this presentation of someone...

I have just seen a mother on social media (TT) sharing videos of her daughter’s journey and medical treatment for this disorder, PANS i believe. The onset was 15 years ago, so it’s an interesting story. Originally (mis)diagnosed as Bipolar Disorder, as a young teen. I think it’s treated with...

Im debating on if I should make a stand alone post because this is an older thread but your question is relevant to mine. With my question basically being; What if the general hypothesis for LDN making ~some few~ people worse?? I have read up where I can, but I am limited by energy and just...

As an Australian, I have also found this to be my personal experience too. It’s been a very vague and confusing journey.