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  1. Spoonseeker

    NICE Pathways - Flow Charts for CFS/ME

    Sorry! It seems there was a significant error in the post with which I started this thread. The NICE Pathway for CFS/ME was actually produced in 2014, not 2019, which makes me wonder why I’ve never come across it before! Anyway this invalidates about half of the above bullet points and makes me...
  2. Spoonseeker

    NICE Pathways - Flow Charts for CFS/ME

    Thanks for your comments. I've just posted this on my blog and will send a copy to Dr Shepherd. I'm afraid I'm with rvallee and alktipping in anticipating an unhappy outcome to the guidelines revision, but thanks to Barry for pointing out the NICE pathways website. I agree that it therefore...
  3. Spoonseeker

    NICE Pathways - Flow Charts for CFS/ME

    ** Sorry - I made a significant error in this post. Please see my correction a few posts below... ** These recently developed (2019) flow charts based on the existing NICE CFS/ME guidelines were brought to my attention by a friend and I am just checking round to see if people are aware of their...
  4. Spoonseeker

    Mental health trust pulls out of chronic fatigue service - East London Foundation Trust

    I’m afraid this is the sort of apparently reasonable pretext on which they will sell these changes to the public. It is important to realise it is part of a much larger strategy to save money and - ultimately it might be argued - destroy the NHS by driving those who have the resources to private...
  5. Spoonseeker

    Mental health trust pulls out of chronic fatigue service - East London Foundation Trust

    Feeling stuck? This current job advertisement - https://www.nhsjobs.com/job/UK/London/London/Tavistock_Portman_NHS_Foundation_Trust/Psychological_Therapies/Psychological_Therapies-v1550923 is for a clinical psychologist/nurse specialist/clinical social worker with the City and Hackney...
  6. Spoonseeker

    Blog: Spoonseeker: Probing the Holes in MUS

    Thanks for the various comments on my blog and for this one in particular, Trish. You have identified an issue which slipped past me. Of course, if it works how it appears to work, patients could be identified as MUS if they had any one of those 27 symptoms on the questionnaire and they weren't...
  7. Spoonseeker

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    Phrases I’ve encountered which come somewhere close to describing the grotesque, Kafkaesque nature of this relationship concern the doctor or therapist ‘denying the patient’s reality’ or ‘refusing to acknowledge the patient as a reliable witness to their own reality”. At the same time of course...
  8. Spoonseeker

    Spoonseeker blog: A (Second) Letter to Dr Phil Hammond

    Many thanks for the welcome greetings! Well done for getting this place together. The chances are that I shan't be as active here as I would like, as eye pain is one of my main M.E. symptoms unfortunately – which is kind of ironic in view of the above. Thanks for the HTML suggestion, Sasha. It's...
  9. Spoonseeker

    Spoonseeker blog: A (Second) Letter to Dr Phil Hammond

    Thanks to Andy for sharing my post. Apologies re formatting. Not intended. Due to shortcomings WordPress app, which I had to use on my tablet because my desktop was being repaired. Have tried to change the format now my PC is back but it won’t let me! If Sasha or anyone else reading this is...
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