Yep!
Hi! i'm in that slack - just joined the autoimmune section because i was bored of people waiting to return to 'normal' when we never will. Hope to...
ive not read further through the posts than your post but as a (highly suspected) covid patient myself who is struggling to recover i want to...
A study out of Germany recently seemed to suggest that children can carry the virus and transmit it at the same rate as adults they are generally...
It does sound, like MCAS from your symptoms. Going to the GP would most likely be completely pointless, as explained by others. I have to trvel to...
Oh wow - amazing news!
Thanks Andy and Ron, and most of all Dr Montoya - A very interesting and heartwarming interview. Shame there was no time for my question, but i...
Thanks! i didnt even know the Science Library was a thing - going to get lost in there for a few weeks now.
A place on the site or a sticky with ll these links could be a useful resource @Andy ? otherwise they just get lost in the middle of threads.
40 years and we are only just getting back to this?! I'm enjoying the delve into the past and the desire for patients now to understand the...
sorry this quote looks too out of context now, and too unwell to go back and retrieve the full quote, but it was in relation to MCAS. The fact...
Totally off the wall question - anyone have any idea if MVP is related to other heart valve issues? i have a MVP with a mild regurgitation, but...
Yes, i am aware there are currently no known genetics for EDSlll. The guidelines I quoted are up to date clinical guidelines, presumably compiled...
I would like to discuss further your use of lax joints and repeated references to pain. Many people with EDSlll do not merely experience lax...
Anecdotally more than one M.E Dr reports up to a 1/3 of patients have co morbid hypermobility or EDS3. I know its not a study, but these need to...
This is a fantastic idea. I hope they have an effective campaign as well, not just a petition. My daughter missed her final year of school due to...
King Coffey and the Butthole surfers Butthole theme song come to mind [MEDIA]
I have ticked a number of the different types pf pain, joints, stabbing, background ache, painful skin lymph nodes, not sure if any else, but the...
I didn't like to say...
Yes, here it is, the Lipkin study...
Separate names with a comma.