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  1. ahimsa

    USA: News from Solve ME

    Help Advance Science—Find a Clinical Study That Needs You Link to Solve ME's list of clinical trials for ME/CFS, Long Covid, and associated conditions
  2. ahimsa

    USA: News from Solve ME

    The Summer 2025 issue of The Chronicle is now available from Solve ME: Summer 2025 Chronicle Previous issues can be found here
  3. ahimsa

    STAT News: Study finds no evidence aluminum salts in vaccines are tied to higher risk of asthma, other childhood diseases

    Study finds no evidence aluminum salts in vaccines are tied to higher risk of asthma, other childhood diseases
  4. ahimsa

    Renegade Research

    Maya Lindemann posted on Bluesky asking for input on the design of a study. I don't plan to fill out this form myself but I wanted to post it here for folks who know more about how to design a good study. Here's a link to the google docs form: (the link in the first post didn't work for me...
  5. ahimsa

    International: Science for ME social media posts

    News in brief posts for the week of July 7 - 13: Mastodon Bluesky
  6. ahimsa

    USA: News from Solve ME

    An overview of this year's Advocacy Week. There were a total of 187 meetings with congressional offices, with 226 attendees from across 36 states and D.C. Advocacy Week 2025: Power, Progress, and Patient-Led Change Additional resources: Congressional Briefing: Urgent Action for ME/CFS (2...
  7. ahimsa

    USA: News from Patient-Led Research Collaborative

    Coverage of the July 9 webinar from The Sick Times: Live blog: Following the Patient-Led Research Fund summer 2025 webinar
  8. ahimsa

    USA: News from #MEAction

    Severe ME Artists Project 2025 Severe ME Day is August 8. Submission deadline for artwork is Thursday, July 24.
  9. ahimsa

    Pathophysiology of sleep disturbances/unrefreshing sleep in pwME?

    I've never had paralysis myself, but I have known several others -- a few in person (support group) and many more online -- who have reported intermittent paralysis.
  10. ahimsa

    News from the USA, United States of America

    Trump's second presidency begins: evaluating effects on the US health system
  11. ahimsa

    Coping with heat

    Saw this post, by The Disabled Ginger, that has some tips for coping with heat: Heat Waves, Wet Bulb Temps and Wildfires A quick comment - the colors on the website were a bit too low contrast for me. Hard to read what looks like dark gray on light gray. But I switched to reader mode (I think...
  12. ahimsa

    International: Science for ME social media posts

    News in brief posts for the week of June 30 - July 6: Mastodon Bluesky
  13. ahimsa

    News from the USA, United States of America

    Terminated NIH grants are being reinstated almost entirely in blue states Posted in STAT+ (paywall) so I was not able to read it all but maybe someone out there can find a link without a paywall. Background: The term "blue state" means a state where the majority of elected officials are from...
  14. ahimsa

    Updates from the UK ME/CFS Biobank / CureME team

    The ME Association posted this message on Bluesky: More information on the CureME website here: https://cureme.lshtm.ac.uk/index.php/2025/07/02/coming-up-second-cureme-interactive-webinar-with-guest-speaker-dr-luis-nacul/ Registration link
  15. ahimsa

    USA: News from Solve ME

    New video from Solve ME, from their EmPower M.E. event on June 27: Pacing: Power In Slowing Down (EmPOWER M.E. 2025) Edit: Links to previous EmPOWER M.E. videos Each of the videos addresses a different topic.
  16. ahimsa

    International: Science for ME social media posts

    News in brief posts for the week of June 23 - 29: Mastodon Bluesky - link is missing now so I've removed it from this post I had a brain fog moment today! I accidentally deleted the Bluesky post for last week's news. I thought it was an error, that I had posted this week's news using the...
  17. ahimsa

    USA: News from the Bateman Horne Center

    Bateman Horne Center - Online Support Group Topic: To Be Announced Tuesday, July 8, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Registration link (this link can display meeting time for your time zone)
  18. ahimsa

    News from the USA, United States of America

    From The Sick Times: UNC shuts down Long COVID clinic, leaving thousands without specialized care
  19. ahimsa

    USA: News from Solve ME

    Two upcoming webinars by Solve ME: 1) The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain fog and Fatigue in People with Long Covid Tuesday, July 22 3 PM Pacific / 6 PM Eastern Webinar Registration (link can display time for your time zone) Description: 2) Probing Functional...
  20. ahimsa

    ME/CFS Research Chatbot

    Some examples of problematic output from Chatbots/LLMs: 1. Fake citations for scientific research (studies that do not exist): https://www.politifact.com/article/2025/may/30/MAHA-report-AI-fake-citations/ 2. Fake citations for legal precedents...
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