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    The causal status of pain catastrophizing: an experimental test with healthy participants, 2005, Severeijns et al

    Maybe catastrophizing isn't a trait after all. I agree with @perchance dreamer that the term is insulting. Do psychologists now what they mean by it? It's the end of the world when I move a finger. Sounds ridiculous? The ultimate bias of psychologists: there is nothing wrong with the patient, so...
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    Why some people with ME/CFS react more strongly to medications

    The Beentjes 2025 paper does mention insuline resistance several times.
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    Intestinal permeability correlated with chronic fatigue in a patient with long COVID—A case report and overview of the literature 2026 Andus

    The Netherlands is close: enough clay in my surroundings, just have to find out where to dig?;)
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    Modulating subjective & objective cognitive state fatigue in long COVID with repetitive anodal tDCS...double-blinded RCT, 2026, Mischke

    4 consecutive daily sessions. Going to a testing facility 4 days in a row. For me that would have been a reason not to take part in this study.
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    Why some people with ME/CFS react more strongly to medications

    Neither does medication intolerance happen in all patients, but how often are we tested on that. I got a 4 hour glucose tolerance test, mid nineties last century. My glucose went up to 10.8, while 11 was the limit for diabetes. Nobody did further testing on insuline. Probably the same for many here.
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    Why some people with ME/CFS react more strongly to medications

    Could there be involvement of insuline resistance that makes alcohol react faster and more furious?
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    Establishing Clinically Relevant Severity Levels for the Central Sensitization Inventory, 2017, Neblett et al.

    Systrom and Novak becoming regressive on deconditioning too. Don't they read papers and comments from other authors anymore. And what about the feelings of the patients? One small step backwards for researchers, a giant leap backwards for patients. I really hope you (and others) can jumpstart...
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    Stigma in functional neurological disorder; a longitudinal study 2026 Mcloughlin et al

    Authors say it's functional, docs say no it's not. Patients say treatment isn't working, but the stigma is. Stop calling it FND and believe the patient that something is not functioning.
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    Establishing Clinically Relevant Severity Levels for the Central Sensitization Inventory, 2017, Neblett et al.

    Have a bunch of people actually thought about these kind of questionaires? Their brainfog must be worse than mine.
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    Establishing Clinically Relevant Severity Levels for the Central Sensitization Inventory, 2017, Neblett et al.

    How on earth can you answer: "I suffered trauma as a child" with: (Never), Rarely, Sometimes, Often, Always.
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    Shared autonomic phenotype of long COVID and myalgic encephalomyelitis/chronic fatigue syndrome, 2026, Novak, Systrom+

    A question for members with more knowledge: Is the way the authors define deconditioning right? Other researchers tried very hard to get rid of that term.
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    Invisible Illness A History, from Hysteria to Long Covid, 2026, Mendenhall (book)

    :hug::hug: very gentle ones. Have you ever felt the need to make changes in a text because of those threats?
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    Invisible Illness A History, from Hysteria to Long Covid, 2026, Mendenhall (book)

    Threatening to sue people into submission, just for writing a book? Is Sir Simon still worthy of a knighthood if this is true? Freedom of the press for me, but not for thee?
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Sorry @Trish it took so long to answer your question about catastrophizing ME/CFS by doctors. I understand you had to ask, on it's own it does not make sense. I had to think deep and hard to try to explain. All health care workers were taught ME/CFS is "between the ears". Study completed and...
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    Evaluating working memory functioning in individuals with [ME/CFS]: a systematic review and meta-analysis, 2026, Penson et al

    "Impaired verbal memory performance"was the main conclusion of the abstract. I can't look behind the paywall, but isn't that a very limited description of cognitive difficulties. Does that mean 10574 paper reviewed, mostly poor quality, and the review itself is quite inadequate too? Impaired...
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