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Fantastic video @Adam pwme well done :thumbup:

‘Too exhausted to be alive’ is a great description

yep, dunno if he was still on it or not

It’ll be interesting to see if he uses the hydroxy as treatment

The pulsating I feel is right at the top of the neck area but it feels like my brain stem is throbbing or swelling up.

That’s a tricky one. I class myself as mild to moderate even though I’m crawling on my hands and knees one meter to the toilet over the period of an hour. Lying paralysed in bed all day with a vegetative brain. It’s not minimising it per se, that's my reality and this is me being mild to...

Seeing this has reminded me to put a Tesco order in as it’s been a while and I don’t want to be bumped off priority for any reason whatsoever. It’s the only shop I could get on priority and will be needing it again during next lockdown.

Thanks @Sly Saint that looks interesting! the term ‘moral menace’ was particularly amusing :laugh: :rofl:

On a usual day I walk between 0 and 50 steps (shuffling between rooms) and I class myself as mild to Moderate at the moment. when I used to wear a Fitbit it used to count me crawling along the floor at a snails pace as walking. Didn’t see the point in using it as it was too inaccurate. On a...

Fantastic @Adam pwme thank you! Just rewatched the first three parts to remind myself. Great video :)

Unless, the doctor who wrote those previous medical records diagnosed ME/CFS; in which case future arrogant doctors are more than happy to dismiss previous doctor’s diagnosis entirely. only happened with one GP, who I spent approximately 5 minutes with. He read my notes and ME diagnosis from 10...

Did they give a reason why you couldn’t be prioritised? :banghead: If Tesco hadn’t accepted me I wouldn’t have had any priority slots anywhere.

Just tell them not to. That’s the same weekly call I was getting, with no caller ID who would ring multiple times until I answered it leaving me no choice. I politely told them to leave me alone and they did thank God, otherwise I would have been changing my number.

Tesco for me, it’s the only shop I have.

It didn’t even occur to me that this would happen. I stupidly presumed ordering online would get easier so I was also dismayed to see how difficult it was to get a slot the other day even with priority ordering. Not as bad as a month wait though. This is the first time I’ve had a basic thing...

This is exactly the reason I’m happy to be not in any vulnerable group. Right from the start this is exactly what I didn’t want to deal with. I’m sorry this happened. I’d definitely change my number.

I shared it with a group of 5. Three of them watched it. 1 said it was moving. The next one said she didn’t realise there were so many suffering, the next one copied what she said (not sure if either of them watched the actual video - they were probably just referring to my millions missing...

It is yes. it’s paid now.

Its not a regular thing. But it was paid late only a few weeks ago, maybe Easter time? Or a bank holiday? Can’t remember. whenever there was a bank holiday mine used to be paid before it. But it seems to have changed. This particular one not paid yet is Housing Benefit. I get my ESA on...