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  1. pteropus
    Post

    Ross River virus immune evasion strategies and the relevance to Post-Viral Fatigue, and ME onset, 2021, Lidbury

    c2001 article about Ross River Virus, mentions Brett Lidbury (https://freshscience.org.au/2001/ross-river-virus-tricks-immune-system) Ross River...
    Post by: pteropus, Mar 16, 2021 in forum: ME/CFS research
  2. pteropus
    Post

    Improving Wikipedia's references to ME/CFS

    hello. just want to say thank you to everyone who has been improving the Wikipedia entry for ME/CFS. i hadn't checked for a while (because...
    Post by: pteropus, Dec 14, 2020 in forum: Advocacy Projects and Campaigns
  3. pteropus
    Post

    Feeling of lacking air.?

    ** UPDATE ** previous winters, i had to sleep sitting upright on pillows, to avoid choking on the lung fluids. i tried multiple asthma drugs that...
    Post by: pteropus, Jun 27, 2020 in forum: General and other signs and symptoms
  4. pteropus
    Post

    Low-dose Naltrexone articles and experiences

    i love my LDN. after GET & years of extreme photosensitivity - then very slow increments of LDN dosage, i was able to go outside in bright...
    Post by: pteropus, Jun 27, 2020 in forum: Drug and supplement treatments
  5. pteropus
    Post

    Is your "startle reflex” super sensitive?

    don't judge, but when i'm well enough, i play "pokemon go" on my mobile phone. if the pokemon runs away from me, there is a millisecond where i...
    Post by: pteropus, Jun 13, 2020 in forum: General and other signs and symptoms
  6. pteropus
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    i'm impatiently waiting for "the moment" when the medical world consider the obvious, and realise they've been abusing patients (not just us), and...
    Post by: pteropus, May 19, 2020 in forum: Long Covid news
  7. pteropus
    Post

    L-carnitine, tryptophane and d-ribose

    d-ribose was useful when i was recovering from GET damage. it also reduced pain in my hands toes etc. i was careful to stay within my energy...
    Post by: pteropus, Mar 12, 2020 in forum: Drug and supplement treatments
  8. pteropus
    Post

    Updates on status of ICD-11 and changes to other classification and terminology systems

    thank you - a magnificent achievement, using a huge amount of knowledge & dogged persistence. i'm crying, because this will allow...
    Post by: pteropus, Jan 20, 2020 in forum: Disease coding
  9. pteropus
    Post

    Eating improves exertion induced fatigue and symptoms of orthostatic intolerance

    regarding the experience that putting food in our mouths, can help us feel better, even though the food hasn't reached the stomach. AFAIK when we...
    Post by: pteropus, Nov 18, 2019 in forum: Post-Exertional malaise and fatigue
  10. pteropus
    Post

    Innovative Drugs Save Lives Only if People Can Afford Them, NYT

    it's a wonderful initiative. however, price agreements between government and pharmaceutical companies, can become grossly inflated over time,...
    Post by: pteropus, Nov 3, 2019 in forum: Other health news and research
  11. pteropus
    Post

    Are there any PT (physical therapist) groups from the USA?

    Workwell Foundation (USA) are exercise physiologists, who have excellent knowledge of ME. they may be able to help you locate a knowledgeable...
    Post by: pteropus, Nov 3, 2019 in forum: USA clinics and doctors
  12. pteropus
    Post

    Flushing in hands and feet

    red/blue colouring of the lower legs, could be blood pooling, instead of being pumped back to the heart. if the small red spots are persistent,...
    Post by: pteropus, Oct 18, 2019 in forum: Hypersensitivity and Intolerance Reactions
  13. pteropus
    Post

    Lyme: another sad story, but a new app for areas with infected ticks

    there's also https://www.ecdc.europa.eu/en/disease-vectors/surveillance-and-disease-data/tick-maps
    Post by: pteropus, Oct 9, 2019 in forum: Infections: Lyme, Candida, EBV ...
  14. pteropus
    Post

    Abnormal Eye and Cranial Movements Triggered by Examination in People with Functional Neurological Disorder, 2019, Edwards et al

    on par with monty python / burn the witch. ridiculous logic, infinite recursive errors
    Post by: pteropus, Sep 19, 2019 in forum: Other psychosomatic news and research
  15. pteropus
    Post

    Feeling of lacking air.?

    i've had something similar for last 2-3 winters. my suspicions include: - our bodies are colder and less able to function at a cellular level...
    Post by: pteropus, Sep 7, 2019 in forum: General and other signs and symptoms
  16. pteropus
    Post

    Potent Activation of Indoleamine 2,3-Dioxygenase by Polysulfides, 2019, Groves et al

    FWIW, i've recently been prescribed pentosan polysulphate sodium (PPS). is there a possibility that it might increase my IDO1 function ?
    Post by: pteropus, Aug 25, 2019 in forum: Other health news and research
  17. pteropus
    Post

    Nature - News feature: Does psychology have a conflict-of-interest problem?, 2019, Tom Chivers

    (not my own comment, & paraphrased) the younger generations are depressed and anxious - but it's not because of social media - it's because...
    Post by: pteropus, Jul 4, 2019 in forum: Other health news and research
  18. pteropus
    Post

    Can POTS come and go? Variability of POTS degree with PEM

    n=1. when i was younger & mostly healthy, i had episodes of POTS, especially in hot summer weather. more recently, a cardiologist who has some...
    Post by: pteropus, Jun 20, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  19. pteropus
    Post

    Australia: News from Emerge Australia

    yes, there's one ambiguity in one of Heidi's comments. but otherwise she's mentioned all the key points about the disease - prevalence, severity,...
    Post by: pteropus, Jun 12, 2019 in forum: News from organisations
  20. pteropus
    Post

    The Timeline of Post Exertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2018, Nielsen

    when the literature review (page 15) lists "anxiety" as a diagnostic symptom, and forgets to include cardiovascular, neurological, immune &...
    Post by: pteropus, Jun 3, 2019 in forum: ME/CFS research
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