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(FYI the same effort will be there for ME too in May, I hope nobody thinks there’s any ME erasure here. Just trying to give both conditions their own spotlight for respective awareness days. The website and campaign in general is still pro both of them!)

Wow! Big admirer of the Millions Missing volunteers and organisers! Such incredible, inspiring work!! Thanks for the tips! Will try not to make a complete disaster of the event. Lol

Edinburgh leaflet handout March 15th London (city centre, yet to be confirmed specifics) leaflet handout and Digivan Tuesday March 18 Volunteers needed if anyone has anyone in mind who they think could come along for a bit to either location. Same efforts will be in place for ME Awareness Day too.

Feedback welcomed as always. Also if anyone would like me to include them (even under a fake name) send me a DM. I’ll be handing these out in Edinburgh on Long Covid Awareness Day and also looking for fellow volunteers to come along and help out. Hoping to get groups like this all around the UK...

Hey guys, wanted to share this. I hope that even if this is too late for Long Covid Awareness Day that maybe it will still be a useful document for future LC or ME campaigns. There’s currently 104 locations around the world that could potentially light up for us and of course, this is only the...

A summary of our Space and plans for Long Covid Awareness Day will be posted at the weekend but wanted to get this idea rolling ASAP due to the timing aspect -

I have 10 free tickets to the event so seriously, if anyone wants to go then let me know! I grabbed the last 10 while I could

Guys if anyone wants any of these car stickers or leaflets for free please DM me! We’re getting some decent website traffic now and regular donations to our campaign, also hoping visitors will be checking out the Network page to visit the various charities, researchers and advocacy groups too...

USA campaign has started and raised over £1,000 in 4 days. The person in charge of this seems very, very in tune with the political landscape over there and best way to maximise revenue on any boards there and seems to have some high profile contacts so let’s see…...

I’m sorry about that. Full response below - ‘Thank you for your email from 12 May on behalf of the “Not Recovered UK” long COVID and ME/CFS patient community. I apologise for the delay in response, which was due to correspondence rules around the General Election. I would like to reassure you...

Super frustrating response to the May #DontForgetME campaign. We’re needing some new ideas for future billboards - possibly the newspaper articles from the Royal Free account showing the ME/CFS coverage in the 1950’s and how little progress has been made since then? - and willing to consider...

https://www.margaretwilliams.me/2005/to-set-the-record-straight-about-ean-proctor-from-isle-of-man.pdf This is pretty damning evidence against Wessely and his involvement, no?

No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!

Hey Trish, thanks for replying so quickly! Oh that’s great. Yeah I wasn’t sure whether to attempt to just write some sort of summary and respond with that or just send over some links, I guess I was worried they’d maybe not read through anything that was already reported on. I was also...

I’ve been Tweeting alot about Wessely and his involvement in the Ean Proctor case and last night a BBC journalist and documentary presenter sent me a DM - ‘I stumbled across a post from you about MECFS and abuse of patients. Could you possibly share more?’ I know it’s just a DM on Twitter but...

So just a quick update we managed to get the song to number 6 on the Swedish iTunes, 13 in the Netherlands, back up to 18 in the UK and top 40 in Austria, Australia and a couple other Eastern European countries. Eurovision is still pretty much dominating the charts and the campaign was pretty...

I've posted details about the campaign to download this tomorrow. Unfortunately it's a bit long winded but I just want to make sure people aren't spending their money on it without it actually contributing to the charts. If anyone wants to get involved or help RT or whatever here's the link! Cheers

I'm going to try push a small '#TroublesWithME' type campaign on social media on Thursday for people to download this and get it higher on the iTunes charts. It went in at number 1 (which was pretty wild) but has slipped through the week (no thanks to Eurovision) and is currently around number...

Hey guys, we got picked up by a local newspaper yesterday - And tomorrow for Awareness Hour on Twitter we're encouraging people to Quote the Tweet of the billboard article and use the hashtag '#DontForgetME' as well as tagging the Twitter handles of the NIHR staff in the Bradford and...