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    Heathrow incident 8/9/25 claimed to be mass psychogenic illness

    Robert Bartholomew’s rapid effort to redeem himself in Psychology Today. https://www.psychologytoday.com/nz/blog/its-catching/202509/mystery-illness-at-heathrow-airport KEY POINTS The sudden outbreak of mysterious symptoms at Heathrow Airport have key hallmarks of mass psychogenic illness. The...
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    Is ME/CFS a form of Host versus Host disease?

    Could this theory also explain intermittent GI symptoms in PwME? I endured 3 years of “rumbling appendicitis” as a child but that diagnosis was only given retrospectively. I was in hospital for further investigations of my symptoms which were increasing in frequency & intensity & was very poorly...
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    Discovering VEXAS Clinical Trial

    This is interesting because of the way the 3 key symptoms are described inferring that it is not necessarily all 3, so therefore a patient cold present with fatigue alone. Is it because it affects mostly men that it was more rapidly investigated and established as a new disease?
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Type 1 Diabetes is believed to have an infectious onset - with genetic predisposition. In terms of heritability, off-spring of males with T1D are more likely to develop the disease, than off-spring of mothers with T1D. There is a greater ratio of males than females with T1D but more females are...
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    DecodeME in the media

    Dame Helen Stokes Lampard is now “our” problem in NZ where she is the Chief Medical Officer.
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    Preprint Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, DecodeMe Collaboration

    Is it possible that there is any use in the raw data that individuals have from commercial genetic testing companies like Ancestry & 23andMe? I understand that there are privacy & security issues around this data but I would be interested if there was a project that could use it.
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    Criticisms of DecodeME in the media - and responses to the criticisms

    I saw them not because I am verified but because I signed up to be able to see notes & then vote helpful or not. I voted not of course and assume many others did too because from what I can see the notes are no longer appearing. There was one Twitter user @capitalistFraud AKA Psychiatry...
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    DecodeME blog: X marks the spot where ME/CFS biology can be discovered

    If the funding was immediately forthcoming; what timeframe would be realistic from launch to results?
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    News from Aotearoa/New Zealand and the Pacific Islands

    A parent in a FB group asked about Neuro Care in Auckland offering treatments for a wide variety of conditions including CFS, Dysautonomia, Concussion, Brain Injury Fibromyalgia etc etc etc oh hand vaccine injury. The treatments are a combination of “Functional Neurological Rehabilitation” &...
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    New Zealand: Neuro Care clinic

    Copied post A parent in a FB group asked about Neuro Care in Auckland offering treatments for a wide variety of conditions including CFS, Dysautonomia, Concussion, Brain Injury Fibromyalgia etc etc etc oh hand vaccine injury. The treatments are a combination of “Functional Neurological...
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    AI-driven multi-omics modeling of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, 2025, Xiong et al.

    https://www.ft.com/content/9cdfadf4-21e2-4656-b0a8-235c5fdb68aa Financial Times Article - with expert opinion from Alan Carson EDIT I have no idea why the link is titled the way it is.
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    News from Aotearoa/New Zealand and the Pacific Islands

    Long Covid Models of Care for People with Long Covid - Report from Ministry of Health Shared in a chat elsewhere today. Possibly published in May 2025. I do not recall seeing it discussed here previously...
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    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    I chanced upon this post from 2017 & thought it worth linking here for newer members like me. Nancy’s article about NLP & the Lightning Process is insightful.
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    Guest Editorial: A Radical Care Pathway for ME/CFS

    Holy moly! I searched for information on Candace Pert & it brought me to this thread. I never knew this sordid story about the NLP founder.
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    New Zealand: ME Support news

    @hibiscuswahine thanks so much for sharing the outcome. I am pleased & impressed with the transparency & rationale. It cannot have been easy for the organisation and I imagine they are pleased to have it behind them.
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    Unevidenced recommendations of brain retraining in Bateman Horne Centers clinical guide for ME and longcovid

    Bateman Horne has updated the guidance document & removed the reference to Brain Retraining. Great result for the efforts of those who engaged with them. https://batemanhornecenter.org/wp-content/uploads/2025/05/Clinical-Care-Guide-First-Edition-2025-1.pdf
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    ME/CFS Skeptic - How many scientific papers are fake?

    There is the "Grievance Study Affair" - a deliberate hoax to get fake studies published, motivated by the authors' desire "to highlight what they saw as poor scholarship and erosion of standards in several academic fields" I realise this is not the issue covered in the blog post but it amused me...
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    Trial Report Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI, 2025, Yu et al

    I’m not sure what to make of this study. @SNT Gatchaman , if I recall correctly you have questioned if Gradual Onset is valid given the prevalence of asymptomatic viral infections. What do you make of this study? If funding wasn’t an issue you could run the same scans on PwME and not...
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    Why "brain retraining" concept as course makes no sense

    That’s exactly the same line my sister in law used when she was trying to sell me on the Lumivitae “ultimate hydrogen experience” €500 water bottle that cures everything, makes you more beautiful, live longer & connects you with the entire universe.
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