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  1. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    The webinar itself is available here: https://www.zonmw.nl/nl/nieuws/terugblik-webinar-over-onderzoek-naar-mecvs
    Post by: ME/CFS Skeptic, Apr 22, 2024 at 6:50 PM in forum: ME/CFS research news
  2. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    During the Webinar Rosmalen also answered to the question how Lifelines determines if someone has ME/CFS or not. This is a quickly translated...
    Post by: ME/CFS Skeptic, Apr 22, 2024 at 6:49 PM in forum: ME/CFS research news
  3. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Here's an English translation of what she said in Dutch during the webinar. Martje Bos: "We conducted research in Lifelines. That's a population...
    Post by: ME/CFS Skeptic, Apr 22, 2024 at 6:48 PM in forum: ME/CFS research news
  4. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    From what I understood, the lifelines estimate was based on how prevalent ME/CFS was among relatives of ME/CFS patients.
    Post by: ME/CFS Skeptic, Apr 17, 2024 in forum: ME/CFS research news
  5. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Apologies, the last one should have been 'without ME/CFS'.
    Post by: ME/CFS Skeptic, Apr 17, 2024 in forum: ME/CFS research news
  6. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    The researcher mentioned above was Martje Bos, who is a ME/CFS patient herself and is studying ME/CFS in relation to other functional syndromes...
    Post by: ME/CFS Skeptic, Apr 17, 2024 in forum: ME/CFS research news
  7. ME/CFS Skeptic
    Post

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Post copied and subsequent posts moved from Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting....
    Post by: ME/CFS Skeptic, Apr 17, 2024 in forum: ME/CFS research news
  8. ME/CFS Skeptic
    Post

    Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting. 2020

    During the ZonMw conference on the Dutch ME/CFS research program yesterday, one researcher said that they estimated the heritability of ME/CFS in...
    Post by: ME/CFS Skeptic, Apr 17, 2024 in forum: ME/CFS research
  9. ME/CFS Skeptic
    Post

    Trial Report Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population, 2024, Gladwell

    Seems like a useful paper that identified many of the problems with the popular Chalder Fatigue Scale, that have been mentioned multiple times...
    Post by: ME/CFS Skeptic, Apr 13, 2024 in forum: ME/CFS research
  10. ME/CFS Skeptic
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    The results were similar 1 year post CBT compared to 6 months post CBT. Unfortunately there was no longer a control group, the authors write: "For...
    Post by: ME/CFS Skeptic, Apr 12, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. ME/CFS Skeptic
    Post

    Trial Report Imbalanced Brain Neurochemicals in long COVID and ME/CFS: A Preliminary Study using MRI, 2024, Thapaliya et al

    What do they mean by the following? "the Glu (p=0.017) level was only significantly higher in ME/CFS after adjusting for multiple group...
    Post by: ME/CFS Skeptic, Apr 10, 2024 in forum: ME/CFS research
  12. ME/CFS Skeptic
    Post

    Trial Report The Head-Up Tilt Table Test as a Measure of Autonomic Functioning among Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2024, Jason

    Do they report the percentage for POTS and OH separately? Couldn't find it in the paper.
    Post by: ME/CFS Skeptic, Apr 2, 2024 in forum: ME/CFS research
  13. ME/CFS Skeptic
    Post

    Video: Who Funds Research? | Why The Charity Sector is Vital For Long Covid & ME/CFS

    Interesting analysis. Many thanks to Peter for doing all this research, I found it very useful. Might be good to write it down into a blog post...
    Post by: ME/CFS Skeptic, Mar 29, 2024 in forum: Fundraising
  14. ME/CFS Skeptic
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    In the methods section on page 19 in the paper: "...Finally, the participant learned if they have won, based upon the probability of winning and...
    Post by: ME/CFS Skeptic, Mar 29, 2024 in forum: ME/CFS research
  15. ME/CFS Skeptic
    Post

    Opinion Leonard Jason - Failure to Define Long Covid Will Impede Research Progress

    I might have misunderstood, but the article is a bit difficult to follow for me: first it suggests that one should measure not only the presence...
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: Long Covid research
  16. ME/CFS Skeptic
    Post

    Opinion Leonard Jason - Failure to Define Long Covid Will Impede Research Progress

    'A pre-determined reduction in functioning should not be required to have long Covid' I disagree with this and think it is one of the big...
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: Long Covid research
  17. ME/CFS Skeptic
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    This is what I got for the GEE modelling with the 3-way interaction: model_formula = "Successful_Completion_Yes_is_1 ~ Sex_Male_is_1 +...
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: ME/CFS research
  18. ME/CFS Skeptic
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    My initial guess would be to ask for 2016 anyway: if it is too large, perhaps we could filter it ourselves but then at least we have the info. But...
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: ME/CFS research
  19. ME/CFS Skeptic
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Thanks for pointing this out and apologies for the typo about the p-value (I accidentally wrote 0.41 instead of 0.041). So when taking al trials...
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: ME/CFS research
  20. ME/CFS Skeptic
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I also don't see missing data, HVA has data for all trials in my dataset. Perhaps an error with uploading or something like that?
    Post by: ME/CFS Skeptic, Mar 28, 2024 in forum: ME/CFS research
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