Howard Schubiner mentions PG in this podcast https://open.spotify.com/episode/40CUczxOiNU869PxOqhkHZ?si=dg1iTGTkQ3WhSHc6xGDB0A He says that they...
I have been trying to access her blog for a couple of weeks and have not had a response to my sign-up, or my tweet or direct messages to both...
True. But at which point does it cross the threshold from real, organic illness to mind-body symptoms? I am trying very hard not to be facetious,...
Sorry, foggy brain! I meant that ongoing symptoms of ME or LC post the acute infection or precipitating event are defined as mind-body symptoms...
That's what I thought he meant. We haven't found evidence, therefore there isn't any. But if they are only looking using standard tests then they...
This thread has been fascinating and I appreciate the time and effort everyone has gone to to explain their point of view. Can I ask a couple of...
Same. Thanks for sharing I have tweeted Jo on X too.
Anyone else get a sign up page when trying to access Jo's blog? Is it now private? https://www.healthcarehubris.com
Thank you..I appreciate that This experience is exactly why people do not want to get involved in advocacy though, as there is always somebody...
Thank you If you are being forced to spend pip on food then clearly universal credit is insufficient to cover your basic needs? Agree..I have...
I have shared this article and these comments with the project group as I helped create the survey Calling people taking action useful idiots is...
This is an interesting idea. Frustrating that the research just isn't happening.
I was wondering if there was less of a gap in the ratio between sexes now that autism prevalence in women is getting recognised and diagnosed so...
Is it though, or is it an historical massive under diagnosis in women?
Yes. This.Thank you for elucidating this so clearly. I have had someone say to me that I am pathologising normal experiences, whereas actually...
As someone currently on several years long waiting lists for a very late diagnosis for autism and ADHD, I strongly suspect that my developing...
I completely understand your perspective on this. We have been screwed too many times. I will do my best to bring the pwME perspective to how the...
There is an option to say "none of these would help" There are some reasonable suggestions of things that we don't seem to have been able to get...
It has been designed to give us support to lobby MPs urgently about just how unfeasible these cuts are, how much they just are not listening and...
I am glad it helped..it helped me to be involved in the project. It all feels really tough right now. Hugs all round folks :hug:
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