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  1. Amy101
    Post

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    That’s a very good point and you’re probably right. They fit a lot in and did a very thorough job. They took a lot of time with it. It came about...
    Post by: Amy101, Feb 20, 2024 in forum: General ME/CFS news
  2. Amy101
    Post

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    Oh not stupid at all, I was surprised they didn’t say he had seen Merryn when they introduced him and I can fully understand why someone would...
    Post by: Amy101, Feb 20, 2024 in forum: General ME/CFS news
  3. Amy101
    Post

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    Hi, it’s Merryn’s sister Amy here. I rarely log on but do still read quite a lot but wanted to clarify something about Dr. Gabor who was featured...
    Post by: Amy101, Feb 19, 2024 in forum: General ME/CFS news
  4. Amy101
    Post

    Dead but it won’t lie down: The myth that ME (Myalgic Encephalomyelitis) = MUS (Medically Unexplained Symptoms).

    I think so considering that people have physically died from the condition and had this acknowledged, the consistent findings within post mortems,...
    Post by: Amy101, Sep 24, 2019 in forum: General ME/CFS news
  5. Amy101
    Post

    UK advocacy, campaigning what’s happening?

    Brilliant, thank you for getting back to me :)
    Post by: Amy101, Sep 5, 2019 in forum: General Advocacy Discussions
  6. Amy101
    Post

    UK advocacy, campaigning what’s happening?

    Hi Cinders, sorry what interview was this? I don’t recall my mum doing any interviews for MEA in a very long time? I’m just intrigued as to what...
    Post by: Amy101, Sep 4, 2019 in forum: General Advocacy Discussions
  7. Amy101
    Post

    Induced coma

    I appreciate what you are saying and a scientific forum should include both sides of an argument, but if your comments are not about said person...
    Post by: Amy101, Aug 3, 2019 in forum: Other treatments
  8. Amy101
    Post

    Induced coma

    They live abroad and live in the country where this is happening. This is also someone we knew prior to Merryn having ME so it’s not someone who...
    Post by: Amy101, Aug 3, 2019 in forum: Other treatments
  9. Amy101
    Post

    Induced coma

    You’ve misunderstood what I was referring to there. I meant the things like being catheterised, a feeding tube etc are already occurring if you...
    Post by: Amy101, Aug 2, 2019 in forum: Other treatments
  10. Amy101
    Post

    Induced coma

    You don’t know the medical details of said person but I’m just repeating what we know of them and what they’re going through. So it’s not unheard...
    Post by: Amy101, Aug 1, 2019 in forum: Other treatments
  11. Amy101
    Post

    Induced coma

    Me and my mum know someone abroad who is currently in an induced coma for the total length of a year (the person has been in it for numerous...
    Post by: Amy101, Jul 31, 2019 in forum: Other treatments
  12. Amy101
    Post

    New Video - The PACE trial - Part 1: Moving the goalposts

    @Adam pwme excellent video, thank you
    Post by: Amy101, Jul 29, 2019 in forum: Advocacy Projects and Campaigns
  13. Amy101
    Post

    Complaint to the GMC: Dr Christian Jessen’s ‘dick head’ and ‘bullshit’ abuse of a parent carer, Dr Neil MacFarlane MRCPsych, 18 July 2019

    I’ve seen many twitter exchanges or personal message between Dr. Christian and members of the public, including that of some friends who have Lyme...
    Post by: Amy101, Jul 19, 2019 in forum: General ME/CFS news
  14. Amy101
    Post

    ME severity scales - discussion

    The Very Severe cannot walk anywhere as they are bedbound, not bedridden. They literally cannot move themselves. From not being able to weight...
    Post by: Amy101, May 17, 2019 in forum: Diagnostic Criteria and Naming Discussions
  15. Amy101
    Post

    ME severity scales - discussion

    Agree that the terms need rethinking and potentially changing to reflect more accurate names to the reality. Please can I add a note on Very...
    Post by: Amy101, May 16, 2019 in forum: Diagnostic Criteria and Naming Discussions
  16. Amy101
    Post

    Merryn Crofts - our last family statement

    We had no idea this had been released until a few hours ago and you are all quite right, Merryn is indeed on the right. May I just say we did...
    Post by: Amy101, May 5, 2019 in forum: General Advocacy Discussions
  17. Amy101
    Post

    Clare Norton article about how doctors dismissed her as neurotic

    Hi thank you for having read the article and you pose some really interest points. I understand not posed to us but in general, but thought I’d...
    Post by: Amy101, Mar 31, 2019 in forum: Caregiver support
  18. Amy101
    Post

    Clare Norton article about how doctors dismissed her as neurotic

    Thank you and I will pass these comments on to her. We always worry as a family when we do these sorts of things. Sending you all the gentlest of...
    Post by: Amy101, Mar 30, 2019 in forum: Caregiver support
  19. Amy101
    Thread

    Clare Norton article about how doctors dismissed her as neurotic

    I thought I would also post this here. A freelance journalist contacted my mum, Clare Norton, about her experiences with the NHS and How they...
    Thread by: Amy101, Mar 30, 2019, 11 replies, in forum: Caregiver support
  20. Amy101
    Post

    M.E. Patients and the Researchers that Silence Them by Laura Elliott

    Thank you so much for your kind words Snowdrop ❤️ Sending gentle hugs
    Post by: Amy101, Mar 20, 2019 in forum: General ME/CFS news
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