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  1. JES
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I completed the survey. I noticed some improvement in symptoms like brain fog, motivation and mental energy with nicotine. We'll see if that's...
    Post by: JES, Aug 2, 2023 in forum: ME/CFS research news
  2. JES
    Post

    Artificial intelligence in medicine

    With all the risks including garbage in garbage out, I'd still take AI over a handful of BPS proponents having the largest say in how diseases...
    Post by: JES, Jul 31, 2023 in forum: Other health news and research
  3. JES
    Post

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Yeah, the study was preliminary, small and low-quality, which isn't surprising since nobody from my knowledge did any groundwork or even attempted...
    Post by: JES, Jan 13, 2022 in forum: Long Covid research
  4. JES
    Post

    Repurposing Drugs for Post–COVID-19 Fatigue Syndrome Methylphenidate, Duloxetine, and Brexpiprazole, 2022, Manu

    Changing the brains of sufferers is exactly what you want to do if it turns out the underlying pathology in ME/CFS and long COVID lies in the...
    Post by: JES, Jan 12, 2022 in forum: Long Covid research
  5. JES
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    It is very curious indeed. One hypothesis often speculated about in Lyme communities and elsewhere was that those blood thinning supplements...
    Post by: JES, Nov 11, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  6. JES
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Yeah, I think the deformability is probably a consequence of something else. I trialed pentoxifylline, which supposedly aids in deformability, but...
    Post by: JES, Nov 9, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  7. JES
    Post

    Oxaloacetate

    Oxaloacetate pills are hard to find, I have only seen Benagene brand available and it gets expensive really quickly as someone pointed out. I had...
    Post by: JES, Oct 7, 2021 in forum: Drug and supplement treatments
  8. JES
    Post

    BPS proponents don't respond well to criticism

    Sadly this has become practice among some other online stores as well. I heard some Amazon sellers contact people who make bad reviews. They even...
    Post by: JES, Aug 24, 2021 in forum: General Advocacy Discussions
  9. JES
    Post

    Why does it take years to move down a level of ME?

    Aging could also impact (in positive or negative way) if the change is observed over several years or decades. Naviaux observed how a person's...
    Post by: JES, Jul 26, 2021 in forum: Post-Exertional malaise and fatigue
  10. JES
    Post

    ‘Help Holger now’ video about a Swedish man with very severe ME

    It seems to have worked at the higher instance, but it's still a big fail in my books if a very sick patient has to constantly go through this...
    Post by: JES, Jul 9, 2021 in forum: General ME/CFS news
  11. JES
    Post

    Possible chronic viral infection in ME/CFS (& other illnesses inc Long covid). Discussion.

    I find it curious though that some long covid patients are reporting improvement or even recovery following one of the vaccines. The hypothesis...
    Post by: JES, Jun 12, 2021 in forum: ME/CFS research news
  12. JES
    Post

    Aripiprazole - Abilify

    We seem to all agree that RCTs are much needed. As I pointed out in the other thread, psychiatrists in Europe aren't keen on prescribing Abilify...
    Post by: JES, May 25, 2021 in forum: Drug and supplement treatments
  13. JES
    Post

    Off label use of Aripiprazole shows promise as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Crosby et al. 2021

    It sounds like a crappy situation, but I wonder if they are not in contact with the right people. For example, there was recently a double-blinded...
    Post by: JES, May 21, 2021 in forum: ME/CFS research
  14. JES
    Post

    Aripiprazole - Abilify

    Yep, so exactly the same guideline as in Finland. The only reason I point this out is that for people reading this thread, they shouldn't think...
    Post by: JES, May 20, 2021 in forum: Drug and supplement treatments
  15. JES
    Post

    Aripiprazole - Abilify

    Abilify is only indicated for psychosis or schizophrenia here, maybe the US for example has classified this differently. For depression it would...
    Post by: JES, May 20, 2021 in forum: Drug and supplement treatments
  16. JES
    Post

    Aripiprazole - Abilify

    Must be quite down to luck though finding a doctor willing to prescribe antipsychotics off-label. In general doctors are very hesitant to...
    Post by: JES, May 20, 2021 in forum: Drug and supplement treatments
  17. JES
    Post

    MEAction 2021 MECFS researchers video with R Davis,Prusty

    They seem vested in the IDO2 metabolic trap hypothesis, maybe a little too much in my view. I still haven't learned why they decided to pick that...
    Post by: JES, May 14, 2021 in forum: ME/CFS research news
  18. JES
    Post

    United Kingdom: ME Association news

    Well it's not even a hypothesis, it's mostly just a list of symptoms and listing of organs affected.
    Post by: JES, May 11, 2021 in forum: News from organisations
  19. JES
    Post

    Let’s end the stigma of psychosomatic illness The Times (London) 22/04/2021

    Well, he is correct that functional illnesses, the way almost everything not known gets included in that group today, are certainly physical. He...
    Post by: JES, Apr 22, 2021 in forum: Other psychosomatic news and research
  20. JES
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm not sure how much it's going to help to know what the virus is. It will save some wasted time that researchers would have spent looking for...
    Post by: JES, Apr 22, 2021 in forum: Long Covid news
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