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  1. Peter Kemp
    Post

    More PACE trial data released

    I think @JohnTheJack could make a strong case that QMUL’s response to his request has been vexatious. I find it inconceivable that the raw data...
    Post by: Peter Kemp, May 22, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Jonathan, Thank you for your remarks, I also agree with a lot of what yourself and others have said on this topic, though I find it...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  3. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Adrian, I agree with most of what you write and have written along these same lines myself. But your conclusion is not completely sound to me...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  4. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Maybe, maybe not. If it is accepted as given that the PACE trial disproves GET and CBT all well and good. I do not get the impression that it is...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  5. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Hi Trish and Graham, the horizontal of the chart is the count of individual participants. As I remarked, each diamond represents an individual...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  6. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Sasha, I accept what you say, the problem is finding the time and energy. I had no intention of contributing to a substantial stakeholder...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  7. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Adrian, did you look at the charts? They represent actual data, not how it was interpreted or reported, but how it actually is. It has...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  8. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Adrian, when I obtained the raw data from the PACE Trial I wanted to analyse it in my own way without external influences directing my...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  9. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    To illustrate my previous points here are a couple of charts which show CHANGES to the primary outcome measures for every PACE participant with...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  10. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Graham and Barry and Rick and Jonathan, will try to answer all at once as rather tired. The reason that I have kept away from other people's...
    Post by: Peter Kemp, Jul 22, 2018 in forum: General ME/CFS news
  11. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Thank you Barry! When the PACE trial arms are assessed as groups, a tiny difference is found for GET and CBT. In groups, this difference is...
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  12. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Jonathan, this is just my take: 'political sophistry' is when I am insincere, self-censor and am selective or dishonest in order to sway or...
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  13. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    I think you make a good point Adrian. I add these remarks. One is that M.E. was 'diagnosed' by a criteria which according to Williams had not...
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  14. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Thank you for your reply. People with ME are surely lucky to have some advocates who are well versed in political strategies, who know how...
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  15. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Hi Sasha, what is 'OI' please?
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  16. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Many thanks to Adam. The Outcomes section now looks like this: “‘Main Outcomes” The list omits the following objective measures: · Return...
    Post by: Peter Kemp, Jul 21, 2018 in forum: General ME/CFS news
  17. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear Adam, I think you have a good point and I will add: return to employment or studying, (or increase in work/study hours per week), transferred...
    Post by: Peter Kemp, Jul 20, 2018 in forum: General ME/CFS news
  18. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Thank you Jonathan and others who replied. It is for the very reason that I want to be sure that the VIRAS response is in the interests of PWME...
    Post by: Peter Kemp, Jul 20, 2018 in forum: General ME/CFS news
  19. Peter Kemp
    Post

    The draft scope for the NICE guideline on ME/CFS is now out for consultation, June 2018

    Dear All, here is a draft of the VIRAS response to the NICE draft scope. I would be glad to hear if patients/advocates have any objections as I...
    Post by: Peter Kemp, Jul 20, 2018 in forum: General ME/CFS news
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