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  1. JoanNI
    Post

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    We are working on that too and have previously awarded bursaries to students from QUB to attend IiME conferences plus currently liaising with...
    Post by: JoanNI, Jul 16, 2023 in forum: Advocacy Projects and Campaigns
  2. JoanNI
    Post

    Northern Ireland: News from Hope 4 ME & Fibro

    Thank you for alerting me. We have this small survey from NICON. Had great discussions with Mental Health Champion Prof Siobhan O’Neill on the...
    Post by: JoanNI, Nov 1, 2022 in forum: News from organisations
  3. JoanNI
    Post

    Northern Ireland: News from Hope 4 ME & Fibro

    This event is different in that the HSC Clinical Education Centre are hosting the platform and advertising the webinars to healthcare providers on...
    Post by: JoanNI, Sep 19, 2021 in forum: News from organisations
  4. JoanNI
    Post

    Podcast: "It's Not All About ME"

    Oh! That’s good to know yes will most certainly keep in touch as I’d like to share your work to our FB Pages and Website. Thank you.
    Post by: JoanNI, Jun 28, 2020 in forum: General ME/CFS news
  5. JoanNI
    Post

    Podcast: "It's Not All About ME"

    Hi Paddy, I’ve just heard about your great work! Are you in N.I., do I know you? Sorry brain complete mush today but just had to hunt you out
    Post by: JoanNI, Jun 25, 2020 in forum: General ME/CFS news
  6. JoanNI
    Post

    Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019): New Frontiers in M.E. -Transforming Patient Safety & Care

    Still in recovery so briefly David Systrom is an extremely helpful gent, nothing was any bother no matter what we asked him to do while in N.I....
    Post by: JoanNI, Sep 22, 2019 in forum: General ME/CFS news
  7. JoanNI
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    The sad thing is, I had read good and bad stories about LP but the desperation to get well overcame all reasoning.
    Post by: JoanNI, Aug 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. JoanNI
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    Yes, I noticed that too. Phil Parker must have a little band of people he alerts to make positive and supportive comments on all ’ME recovery’...
    Post by: JoanNI, Aug 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. JoanNI
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    Yes that’s correct, ‘think only positive thoughts and speak only positive words with great enthusiasm’ if I remember rightly. They don’t actually...
    Post by: JoanNI, Aug 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. JoanNI
    Post

    ME/CFS success story: Lightning Process on Youtube 2019

    The advertised ‘3 day’ course is misleading, it’s actually 2days at 4 hours and 1day at 2 hours, so a total of 10 hours over 3 days. There’s...
    Post by: JoanNI, Aug 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. JoanNI
    Post

    Fundraising: Manchester (UK) Primary Care research: Exploring Trauma & Distressing Experiences Following Medical Encounters.

    Sorry I can’t get on here much, just replying when alerted elsewhere. Hope this helps “Telephone interview - minimum 20 patients - more if time...
    Post by: JoanNI, Aug 11, 2019 in forum: Fundraising
  12. JoanNI
    Post

    Response to Michael Sharpe’s claims of harassment

    A 30 second spot during daytime TV is very affordable but what powerful message could be produced during such a short time? Approx picking out...
    Post by: JoanNI, Mar 31, 2019 in forum: Advocacy Projects and Campaigns
  13. JoanNI
    Post

    Response to Michael Sharpe’s claims of harassment

    @Adam pwme , I’m considering using this during our N.I. September conference, would I have your permission to do so please? Do I need permission...
    Post by: JoanNI, Mar 31, 2019 in forum: Advocacy Projects and Campaigns
  14. JoanNI
    Post

    Response to Michael Sharpe’s claims of harassment

    https://www.thedrum.com/news/2017/02/22/how-much-does-it-cost-advertise-uk-tv-heres-what-channel-4-itv-and-more-charge-slots I haven’t studied...
    Post by: JoanNI, Mar 31, 2019 in forum: Advocacy Projects and Campaigns
  15. JoanNI
    Post

    Response to Michael Sharpe’s claims of harassment

    That’s the best idea I’ve ever heard!
    Post by: JoanNI, Mar 31, 2019 in forum: Advocacy Projects and Campaigns
  16. JoanNI
    Post

    What info/stats could be useful in interesting people/organisations into ME research?

    Thanks so much! Lots to consider here to hopefully attract an interest in ME research in N.I. if we get very, very lucky. HSC Research &...
    Post by: JoanNI, Mar 5, 2019 in forum: General Advocacy Discussions
  17. JoanNI
    Post

    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Excellent thanks so much please let me know when the transcript is completed as I don’t get on S4ME very much. We have the problem with the first...
    Post by: JoanNI, Nov 6, 2018 in forum: Advocacy Action Alerts
  18. JoanNI
    Post

    Event, Newry, N. Ireland: Dr. Jonathan Kerr: ME/CFS Subtypes & Targeted Effective Treatments

    Yes I’m going to ask for his permission to livestream. I had to debate in my head if public live-streaming again was the ‘right’ thing to do by...
    Post by: JoanNI, Oct 17, 2018 in forum: General ME/CFS news
  19. JoanNI
    Post

    (not a recommendation) Brave Mark hopes TV show appearance will inspire others - Ulster Herald

    Success I think. I spoke to the editor, he said the information was sent in a press release from Countryfile and their interest is only because...
    Post by: JoanNI, Oct 1, 2018 in forum: General ME/CFS news
  20. JoanNI
    Post

    (not a recommendation) Brave Mark hopes TV show appearance will inspire others - Ulster Herald

    Brilliant email Sally. I may give the newspaper a ring too. What a damaging article, whatever the truth of the story is.
    Post by: JoanNI, Oct 1, 2018 in forum: General ME/CFS news
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