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I apologise for raising the question and not coming back to clarify. I ran out of capacity. The AGM for ANZMES on the 1st Nov did not have a quorum (10 people) so it has been rescheduled to Monday 24th Nov, and they have announced a change of approach to be voted on - which is evidence that...

Just wondering if there is a thread to discuss ANZMES upcoming SGM and AGM and related documents (including a Constitution refresh) here, as there are major issues. I wonder if other people are considering voting No, and providing feedback to ANZMES or will be at the SGM to speak (if allowed).

Has anyone taken a look at https://www.emerge.org.au/lea-ea-bhc/ as yet? Promoted in the Emerge Australia enewsletter dated 6th May as follows:

And another review for David's book... https://alysontheblog.com/2024/06/22/performance-by-david-coventry-2024/

In-depth interview with David https://volume.nz/ellipsis/enacting-the-illness-a-conversation-with-david-coventry-ellipsis Also an introduction https://volume.nz/volumebooks/book-of-the-week-performance-by-david-coventry

In-depth interview with David https://volume.nz/ellipsis/enacting-the-illness-a-conversation-with-david-coventry-ellipsis

New novel by recognised NZ author, David Coventry, pwME, about his experience with ME. https://teherengawakapress.co.nz/performance/ Available in paperback or kindle

The following Ministry of Health commissioned report was published on 16th May 2024. Life since the pandemic: How the COVID-19 pandemic experience has shaped public attitudes and beliefs on public health, infectious disease and vaccination | Ministry of Health NZ I haven't read this and am not...

https://web.archive.org/web/20201103222631/https://www.goodfellowunit.org/node/468444 It’s almost word for word, except took out pacing and that LDN has some evidence, to say neither have any, and added GET, CBT, and LP

Recording: A Neuroinflammatory Model for ME/CFS (a hypothesis) - Dr Angus Mackay Angus is keen to hear from people about whether this model resonates with them. Does it align with your experience of ME/CFS? He invites you to email him to discuss: angus1mackay@hotmail.com

Is anyone aware of a paper that does accurately show the effectiveness of the right kind of pacing?

There is a slide deck linked to in the description of the video

Has this thread disappeared? I am getting an error when I click on it and can't find anything when I search for 'norway questionnaire'.

@Hutan brilliant letter which leads the reader thru the issues. Thanks so much for preparing it and also asking questions around existing strategy and whether Cathy should be mentioned. I have raised with the GP education team at M.E. Awareness NZ. Yes please send on your own account - it will...

Does anyone have access to BMJ and know whether this guidance recommends GET and CBT and/or pacing?

Bruce Arroll has a very high reputation within medical circles in NZ.

This may have been answered elsewhere. The Goodfellow Unit is within Auckland University and has a role in providing education for health professionals. They are endorsed by the RNZCGP to deliver this education and people attending their education can obtain Continuing Medical Education (CME)...

One step forward and three steps backwards sometimes. I think it is fair to say that the previous advocacy efforts with the NZMA were the direct cause of the plenary session on CFS at GPCME 2023 Rotorua including five 'experts' who support the anti-NICE stance. So a backfire there. It is...

fyi M.E. Awareness NZ and ANZMES have connected with our Health and Disability Commission (HDC) over the past year about the risk of harms from the poor quality of clinical information on ME/CFS at GP education events. HDC have been receptive, have given advice (which has been acted upon) and...

Please feel free to send suggested changes to m.e.awareness.nz@gmail.com or to ask for a copy of the powerpoint. We are happy for others to use the powerpoint for their own use.