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    Why is showering so PEM/OI inducing

    When my head goes under the water for the first time I get extremely chilled before I warm up from the warm water. As part of my next day PEM (from showering or anything else) I will wake up with a migraine. If I let chewable aspirin dissolve under my tongue soon before going to sleep, I won't...
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    Oliver Sacks Put Himself Into His Case Studies. What Was the Cost?

    nitter for people not on X https://nitter.net/sapinker/status/1155887249608851456?ref_src=twsrc^tfw|twcamp^tweetembed|twterm^1155887249608851456|twgr^|twcon^s1_&ref_url= The Pinker tweet starts on page 3 of this thread...
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    The Born Free Protocol

    Joshua Leisk on nitter Dec. 21 retweeting himself from 31 Jul 2024. https://nitter.net/joshual_tm/status/2002874821731094778#m He's mentioning OMF. OMF needs to make repeated public statements until it's common knowledge that Leisk's BF Protocol has nothing to do with them, that they didn't...
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    News from the USA, United States of America

    Sen. Cassidy, a former physician, spars with Kennedy over mRNA vaccines
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    News from the USA, United States of America

    Senators Warren and Bernie Sanders Accuse Robert F Kennedy Jr of Breaking Promise on Vaccines
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    DecodeME Initial Results Webinar, Thurs Aug 14th, 3:30pm

    I don't have a Facebook account and couldn't watch it using the link @Andy provided but I could watch it by clicking play on the embedded video in this thread. Once it starts playing you can expand it to full screen. Maybe @Andy could let people know in the post with the video that if they...
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    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    Columbia will pay a settlement to the government and a vast majority of grants will be reinstated. https://president.columbia.edu/content/our-resolution-federal-government COLUMBIA | OFFICE OF THE PRESIDENT Our Resolution With the Federal Government
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    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    I didn't get a paywall. (Edited to add that I later went back and got a paywall.) I posted the start and end of a long article. https://www.nytimes.com/2025/03/21/nyregion/trump-columbia-university-400-million.html Decades Ago, Columbia Refused to Pay Trump $400 Million. Note That Number. A...
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    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center, Lipkin

    https://www.nbcnews.com/news/us-news/columbia-university-trump-demands-funding-rcna197261 Columbia University agrees to Trump demands in effort to restore federal funding The Trump administration — which canceled $400M in grants — had ordered the school to implement a mask ban, discipline...
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Kennedy moves to eliminate notice and public comment requirements for certain HHS decisions https://www.cnn.com/2025/02/28/health/kennedy-moves-to-eliminate-notice-and-public-comment-requirements-for-certain-hhs-decisions/index.html Edited to add: RFK Jr. issues rule barring public comment...
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    Should we change our name: 'ME/CFS Skeptic'?

    ME/CFS Elucidator
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    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    The main issue for me is that alcohol causes me to get migraines and it doesn't take very much so I don't drink at all. Edited to add: I've had ME/CFS since I was 17 (1983). I don't know if alcohol would have still caused me to get migraines if I didn't have ME/CFS. ME/CFS made my migraine...
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    Painkiller effectiveness for people with ME/CFS

    Ibuprofen helps me with muscle pain, which also helps me sleep better, but it upsets my stomach so I take it rarely. I used to take an extremely overpriced product called Migralex for migraines and anticipatory next day delayed PEM migraines which worked if the trigger wasn’t too severe...
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    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    Short blog and 22 minute video interview. Thank you, @dave30th and @Chris Ponting. Trial By Error: Professor Chris Ponting Discusses His Recent Article in The Conversation about the Plight of ME/CFS patients...
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    News from the USA, United States of America

    2024 Long COVID RISE Symposium https://sites.uw.edu/longcovidclinic/long-covid-rise-symposium/ Agenda https://bpb-us-e1.wpmucdn.com/sites.uw.edu/dist/0/27887/files/2024/10/Final-2024-Rise-Symposium-Agenda.pdf Slides...
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    Ed Yong Articles on Long Covid & ME/CFS

    Ed Yong, Journalist/Author - XOXO Festival (2024)
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    CoRE: Long Covid, Lyme and related conditions clinic at Mt Sinai hospital

    Thread Reader for those not on X. https://threadreaderapp.com/thread/1844981056434245987.html
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    Was there a gap between trigger and onset of your ME/CFS?

    This is also my answer. My onset was mono and strep throat at the same time.
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