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  1. Clementine
    Post

    Sweden: ME clinic and Masano Health digital rehab for ME/CFS

    Amazing news!
    Post by: Clementine, Mar 22, 2023 in forum: Other clinics and doctors
  2. Clementine
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    I was a patient at Stora Sköndal for a couple of years. Although things were far from perfect, my impression was that they were running a clinic...
    Post by: Clementine, Mar 13, 2021 in forum: Recruitment into current ME/CFS research studies
  3. Clementine
    Post

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    It's problematic with a study with such high demands on participants. Severely ill people with ME can probably not participate, due to high...
    Post by: Clementine, Mar 7, 2021 in forum: Recruitment into current ME/CFS research studies
  4. Clementine
    Post

    Sweden: Stora Skondal to close

    It depends on where you live, but there seems to be a trend in general in Sweden that more and more should be handled by a primary physician after...
    Post by: Clementine, Dec 9, 2020 in forum: General ME/CFS news
  5. Clementine
    Post

    Sweden: Stora Skondal to close

    Regarding this, that it's a big problem when healthcare for ppl with ME is structured like healthcare for pain management/rehab is in Sweden, it...
    Post by: Clementine, Dec 5, 2020 in forum: General ME/CFS news
  6. Clementine
    Post

    Sweden: Stora Skondal to close

    This is key here, and I want to clarify what my experiences were regarding this. Changing the contract to time limited doesn't only change the...
    Post by: Clementine, Dec 3, 2020 in forum: General ME/CFS news
  7. Clementine
    Post

    Sweden: Stora Skondal to close

    This is really, really bad. I was a patient at Stora Sköndal and I've been following the ME specialist healthcare in Stockholm for a number of...
    Post by: Clementine, Nov 28, 2020 in forum: General ME/CFS news
  8. Clementine
    Post

    News from Scandinavia

    The Swedish doctors' magazine Läkartidningen is publishing an article promoting BPS for long haul covids. It's bad. They are leaning on Simon...
    Post by: Clementine, Jul 26, 2020 in forum: Regional news
  9. Clementine
    Post

    The Mind-Body Syndrome Study (2019) Maroti et al

    Maroti is... Let's just say that he's responsible for this. It's written in Swedish but hopefully google translate is good enough. The short...
    Post by: Clementine, Aug 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Clementine
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    I'm also wondering about the recruiting process, because they don't seem to contact all of their patients. I'm a patient there and I have IBS but...
    Post by: Clementine, Jul 20, 2019 in forum: ME/CFS research
  11. Clementine
    Post

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    From what I've read about this study, it requires you to attend the clinic twice, once before it starts and one more time later. These meetings...
    Post by: Clementine, Jul 20, 2019 in forum: ME/CFS research
  12. Clementine
    Post

    News from Scandinavia

    It's the Bragée clinic.
    Post by: Clementine, May 6, 2019 in forum: Regional news
  13. Clementine
    Post

    News from Scandinavia

    Exactly. This letter to members was sent after some blogposts very thoroughly described the problems with this study...
    Post by: Clementine, May 6, 2019 in forum: Regional news
  14. Clementine
    Post

    News from Scandinavia

    I will probably make people very angry for writing this but the situation is this: One of the specialist clinics for pwME in Sweden claims to be...
    Post by: Clementine, May 5, 2019 in forum: Regional news
  15. Clementine
    Post

    News from Scandinavia

    I'm so sad and angry about the situation @mango is describing, but it's important that people with ME arounds the world get to know the truth. The...
    Post by: Clementine, May 4, 2019 in forum: Regional news
  16. Clementine
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Thank you, I forgot!
    Post by: Clementine, Apr 10, 2019 in forum: Fundraising
  17. Clementine
    Post

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    A little push to help the crowdfunding in Sweden. It's a short piece about the accomplishments so far, stating that ROI is great so people should...
    Post by: Clementine, Apr 10, 2019 in forum: Fundraising
  18. Clementine
    Post

    News from Scandinavia

    They have done that sometimes before, but often they have also pointed out that not all people agree on it. In this article, they have no...
    Post by: Clementine, Apr 8, 2019 in forum: Regional news
  19. Clementine
    Post

    News from Scandinavia

    Swedish Dagens Medicin has written about the OMF research collaboration in Uppsala. The article is short and not spectacular but it is somehow...
    Post by: Clementine, Apr 8, 2019 in forum: Regional news
  20. Clementine
    Post

    Sweden: Acceptance & Commitment Therapy for ME/CFS – A feasibility study, 2019, Jonsjö et al

    The researchers behind this study are determined in their beliefs that the symptoms in ME don't have a biological cause and that increasing...
    Post by: Clementine, Mar 5, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
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