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The petition has more than 900 signatures in less than 24 hours, this is great!

I've had this thought too, because their claims make no sense right now. I'm wondering if one person wrote about PEM, and then somebody else (who doesn't believe in PEM) wrote about neurplasticity programmes. Then a third person (who knows nothing about PEM or DNRS but is supported by AI) is...

On Sunday, the first episode of a new season of Maran (meaning "nightmare" or "witch") will be available. It will cover how on earth we ended up with The National Board of Health and Welfare recommending GET. It's in Swedish but the manuscript will be published and can be translated with google...

I'm unfortunately disappointed about this. It's vague, without any references to back up their claims.

In this context, I think "avstå" kan be translated to "avoid". Normally, it isn't the best translation ("refrain" would be beter in most contexts). In this case however, I think that's what's influencing his defence and how he's phrasing it. He and Socialstyrelsen probably don't want to be...

They are also being direct about how problematic the process has been. They bring up several weird choices (chosing experts etc.) and it's really nice to see this clear and fearless approach.

Amazing news!

I was a patient at Stora Sköndal for a couple of years. Although things were far from perfect, my impression was that they were running a clinic that was slowly but steadily improving. The occupational therapist working there had one of the best insights I've seen in what life is like with ME...

It's problematic with a study with such high demands on participants. Severely ill people with ME can probably not participate, due to high demands that will induce PEM.

It depends on where you live, but there seems to be a trend in general in Sweden that more and more should be handled by a primary physician after some time, assesment and interventions from specialized healthcare. However, it differs a lot in how easy it is to get back in touch with...

Regarding this, that it's a big problem when healthcare for ppl with ME is structured like healthcare for pain management/rehab is in Sweden, it can be really problematic. I made a post on instagram today about pain and my experiences form the pain rehab/management clinic at Danderyd and so...

This is key here, and I want to clarify what my experiences were regarding this. Changing the contract to time limited doesn't only change the time you are a patient at an ME-clinic. It also changes what happens and how it happens during your time there. For an ME-patient it means that things...

This is really, really bad. I was a patient at Stora Sköndal and I've been following the ME specialist healthcare in Stockholm for a number of years, and I think this bad trajectory started when the contract with the city council (Region Stockholm) changed regarding time limited interventions...

The Swedish doctors' magazine Läkartidningen is publishing an article promoting BPS for long haul covids. It's bad. They are leaning on Simon Wessely. https://lakartidningen.se/opinion/debatt/2020/07/biopsykosocialt-synsatt-kan-hjalpa-vid-langvariga-covid-19-symtom/#

Maroti is... Let's just say that he's responsible for this. It's written in Swedish but hopefully google translate is good enough. The short version is that a person he met in clinical settings showed symtoms of ME that he recognized but still decided that it was exhaustion syndrome, burnout...

I'm also wondering about the recruiting process, because they don't seem to contact all of their patients. I'm a patient there and I have IBS but I haven't been asked to participate. I get home visits from them because I get so very affected when I leave my home (which I do like once a year)...

From what I've read about this study, it requires you to attend the clinic twice, once before it starts and one more time later. These meetings are to get information and talk to a nurse. The testing is done on your own at home, it I understood things correctly. As with so many studies, this...

It's the Bragée clinic.

Exactly. This letter to members was sent after some blogposts very thoroughly described the problems with this study...

I will probably make people very angry for writing this but the situation is this: One of the specialist clinics for pwME in Sweden claims to be biomed but is ver much bps. They are involved in at least one bps study, that you can read about here. A couple of years ago RME opposed this study...