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  1. Hutan

    News from Aotearoa/New Zealand and the Pacific Islands

    Chief Medical Officer was appointed to Te Whatu Ora (ie NZ's health system) and started in October last year. Her name will be familiar to many on the forum Dame Helen Stokes Lampard https://www.tewhatuora.govt.nz/corporate-information/news-and-updates/national-chief-medical-officer-appointed...
  2. Hutan

    Australia: National Health and Medical Research Council (NHMRC): Development of ME/CFS guidelines

    Yes, but one of the local advocates has been a proponent of an expensive unproven therapy. It will be really disappointing if we see a guideline coming out recommending a range of supplements and other unproven treatments instead of making it clear that there are no treatments that have been...
  3. Hutan

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I have this morning sent the following to my Cochrane country representative (who is also a member of the Cochrane Board). Perhaps others could contact their Cochrane national representative to ensure that they are aware of what has been done in Cochrane's name?
  4. Hutan

    “I still can’t forget those words”:mixed methods study of persisting impact [of] psychosomatic and psychiatric misdiagnoses, 2025, Sloan+

    These people have clearly been damaged by medical systems. Unlike us, they eventually got a diagnosis with no taint of psychosomatisation. Even then it sounds as though most of them still carry the scars. There is no reprieve at all for us. I haven't seen my doctor for over two years after she...
  5. Hutan

    Exertional Exhaustion [PEM] Evaluated by the Effects of Exercise on [CSF] Metabolomics–Lipidomics and Serine Pathway in [ME/CFS], 2025, Baraniuk

    Because the timing of PEM is unpredictable, it actually would have been better (if the aim was to characterise CSF in PEM) to do the lumbar puncture when someone reported that they were experiencing PEM. (Although that would have been a nightmare for the participants.) I think we have to get...
  6. Hutan

    News from the USA, United States of America

    There has been a lot of good work by ME/CFS and long Covid advocates in the US lately. Catching up with the news posted by @Dakota15 and others over the last few days inspires hope. It was good to read the compelling testimonies given to the Alaskan Congress transcribed by @forestglip here; I...
  7. Hutan

    Thesis Towards precision medicine for (long) COVID, 2025, Baalbaki

    University of Amsterdam Supervisors: A.-H. Maitland-van der Zee H.J. Bogaard
  8. Hutan

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    Does it make sense that the frequency that works (assuming it works, which I think is rather unlikely) would be exactly the same for everyone, regardless of their size, and other things?
  9. Hutan

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    We have deleted a number of off-topic posts
  10. Hutan

    Impaired Endothelial Function in Individuals With Post-Acute Sequelae of COVID-19 Effects of Combined Exercise Training, 2025, Choi et al

    Sounds wonderful, but it is probably worth looking into the details. Mostly Korean, with authors from the UK, US and Canada. Just from the abstract: It's a very small study. In particular, the exercise intervention only has 14 PASC and 14 PASC controls. I think there is likely to be a lot of...
  11. Hutan

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    Here's our vagal nerve stimulation discussion thread, which includes a fair bit on tragus clips. Vagus Nerve Stimulation I haven't read over the thread in detail lately, but my impression is that members have mostly not reported it being the miracle cure that this study suggests it is. When...
  12. Hutan

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    The differences look robust, the study seems to be mostly ok, apart from the glitch in wording I noted above. I didn't see any information about dropouts though, which may perhaps be driving the changes. The figure captions suggests that there were no dropouts, which would be very unusual...
  13. Hutan

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    2.4 The Effects of LL-TS on HR Changes During the 24 h-Holter There's an error in the text - there were no differences in the minimum heart rate recorded in the 24-hour holter measurements, neither at different measurement times or between groups. The bolded 'minimum's should be 'average'.
  14. Hutan

    Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection, 2025, Zhuo Wang et al

    A study from Wuhan, China. Last time we looked, studies of tragus stimulation were flawed and unreliable. The tragus is just the pointy bit of cartilage in front of the ear canal - so, up from the ear lobe, but on the face side of the ear, rather than on the side of the ear that flaps around...
  15. Hutan

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    I really appreciate the translations. I would not necessarily bother to translate an article unless the poster told me it was an important one. In the case of the reply from Sten Helmfrid and others, I found the translation very useful. That reply was very well written, I think the wording...
  16. Hutan

    Trial Report Randomized, waitlist-controlled trial of Cordyceps sinensis mycelium culture extract (Cs4) for long COVID patients in Hong Kong, 2025, Chen et al

    Yes, making this study pretty much useless, unless the improvements were really large. With the bias probably made worse by selective recruitment and what seems to have been a campaign to hype Cs4 just prior to the trial.
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