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Abstract: Rare defects in the promoter region of SLC16A1,the gene encoding monocarboxylate transporter 1 (MCT-1), result in exercise-induced hyperinsulinism. In this disorder inappropriate insulin secretion is triggered by anaerobic exercise with consequent hypoglycaemia. We describe the case...

Both me and my dad had something very similar. Oftentimes when we stood up too fast we’d faint (or in his case almost faint) or if we stood up for too long on a bad day start feeling like were about to faint.

That’s what their analysis says. but when you look at things like drop-out rates you start to wonder if it’s even lower than that, starting to make things worse than better.

The more I think about it, the more I think I’ve had OI (consistent with “POTS” presentation) since atleast my early teenage years, possibly earlier (hard to remember symptoms that far ago) but only developed ME and more severe OI with a COVID infection when I was 17/18. Is that even possible...

Aha. But they want their findings to apply to ME while keeping the hegemony of the CFS name that simplifies the condition down to chronic fatigue which makes it far easier to psychologise.

I would guess that OI is the most “treatable” part of ME/LC

Since long COVID patients are more likely to naturally recover, I guess they are more likely to attribute that to whatever they were taking at the time.

Yep. Keeps on making my browser crash though. Here are two pics I downloaded that seemed rather good. Log scale comparison of NIH disease funding per burden: ME Association funds vs Spending:

The window of what is deemed politically acceptable. Anything outside of it is "radical". I guess it works for medicine too.

It’s a shame their notion website is very buggy on ios and doesn’t let you zoom into pictures.

I quite like these suggestions @Cybergreen91 . I’ll be signing your petition even if I don’t completely agree with the words you chose because I think they are better even if they aren’t perfect. For Acquired Exertional Failure Syndrome (AEFS), I think that’s a pretty good name, and works well...

I’m just gonna reput this part from the original question here. Because I agree with Trish and Jonathan in theory, but in practice in the current environment I don’t know how feasible it is to leave it up to doctors the vast majority of which think ME = CFS = [psychiatric] Chronic Fatigue

Possible, but unlikely, and would be a significant finding to have such a harsh difference in subtypes.

Brainfog is such a broad concept. For me it can be anything from having a fuzzy head feeling with a headache, to being unable to form certain thoughts or endure certain stimuli without triggering PEM, to occasionally having a completely blank mind (blanking out and being thoughtless was a major...

For reference here is the depaul questionnaire:

The most popular questionnaire for PEM is the De-Paul Symptom Questionnaire, which, to be frank, is not the best, as it mostly focuses on fatigue after exertion and seems to flag an unlikely proportion of people with other illnesses having PEM. It seems there isn’t much competition. The FUNCAP...

Oh dear. The psychologisers must be very happy with that assertion.

Abstract: Endometriosis, a chronic inflammatory condition affecting 10% of biological women, is widely understudied and particularly overlooked in later life. Discussions surrounding endometriosis predominantly centre on medical gender bias during reproductive years, with limited attention to...

The Hill RFK Jr.’s nomination gathers steam after Senate meetings GOP senators seem to be embracing the potential for Robert F. Kennedy Jr. to lead the Department of Health and Human Services, despite his controversial views on vaccines and pro-abortion record. Kennedy was initially thought...