That's great news. A government department that listens, too. Feels as if we ought to organise a flag day just to celebrate that!
For me (moderately ill) I often wake up with it the day after exertion. There appears to be some kind of relationship with sleep, but I don't...
It's all great news, but that's fantastic to hear.
Maybe there are physicians who're interested, but their involvement is less public? There are good scientists, but I imagine they're doing full...
Yes, I think so. Maybe he's just missed the point a bit? He says he understood as far back as 2010 that the term ME/CFS is a placeholder for...
Complete cobblers, then. Nobody has the faintest idea, and shouldn't be pretending they do. :rolleyes:
Part of my drive to sit resembles having very low blood sugar. The weakness, dizziness, spaciness, and that strange feeling that you can't quite...
He appears to have a lot of influence, though, if no one's willing to deal with him. I suppose it's possible the whole organisation is unable to...
I had dementia with a deficiency too, it was really frightening. Luckily I got a lot of my cognitive capacity back, but my memory's been much...
No worries, I can write a lot of verbiage and still be as clear as mud! :D I sort of understand why the MEA made this mistake, because I've seen...
That's not what I said, though. I was suggesting social media managers usually respond by making a post telling the commenters that they were...
It is, in theory at least, where MEA engages with some of its client base. Disability charities should offer multiple points of access, as it...
I don't understand the approach. If something turns into a major discussion point, social media managers could post a boilerplate reply thanking...
Nail on head. All those decades in existence, but the MEA currently looks amateurish. The chair seems to have contributed quite a lot to that...
It wouldn't need to be super careful about comms if it actually understood the issues. Homeless charities don't have to take care not to publish...
Honest question (I don't know the answer): would that matter in every study? I've variously shared houses and worked closely with people with...
Thanks for that, I hadn't been able to see the questions because I'm not an X member.
That's the one thing that needs saying. A consensus might be easier to achieve if it states that, at minimum, delayed-onset PEM is required for a...
When it comes to infections, would it be more accurate to say ME/CFS is 'associated with' rather than 'triggered by' infection? There appears to...
Yep. Offering reasonable adjustments includes not insisting people get in touch to request them every time, especially when particular impairments...
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