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  1. Andy

    Poll: To what extent are you (PwME) still shielding from Covid?

    There are two aspects as to why I and my wife continue to shield as much as we can, and wear masks on the limited occasions we share a space with other people. First is to protect us from catching Covid again, with the main concern that the next infection might lead to a reduction in my...
  2. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 4th Nov. Bluesky: https://bsky.app/profile/scienceforme.bsky.social/post/3lany4zx3uk2n Facebook: https://www.facebook.com/sci4me/posts/pfbid029nvTJp7CF8A83GmVD8Xs6dnFC76Px5AnTwtyrGRgApaHkJRzE6Gr6fUUBimDFBbPl Mastodon...
  3. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 4th Nov. Bluesky: https://bsky.app/profile/scienceforme.bsky.social/post/3lall5dg7jk2k Facebook: https://www.facebook.com/sci4me/posts/pfbid025hPbi1ZP3NFetLdZGo84GCyv2pHdqvyHTppQghd5eoZTRVxxbvVGxqgRBMiKufY3l Mastodon...
  4. Andy

    Patient and Public Involvement opportunities in ME/CFS and other research

    This seems to be a muddled view over what PPI is in research studies. First, a list of desired research priorities has already been produced, see UK: Priority Setting Partnership for ME/CFS. This is not an example of the PPI that is the focus of this thread. Second, we have this thread, Making...
  5. Andy

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Now at 12,136 signatures. Petition main page, https://www.change.org/p/cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review
  6. Andy

    Editorial: On the cusp of the silent wave of the long COVID pandemic: why, what and how should we tackle this emerging syndrome... 2024 Westermeier+

    Full title: Editorial: On the cusp of the silent wave of the long COVID pandemic: why, what and how should we tackle this emerging syndrome in the clinic and population? 1 Context There is an urgent public health problem due to the rising number of individuals who remain with their health and...
  7. Andy

    Stroop task and practice effects demonstrate cognitive dysfunction in Long COVID and ME/CFS, 2024, Baraniuk et al

    New title and published abstract. Stroop task and practice effects demonstrate cognitive dysfunction in long COVID and myalgic encephalomyelitis / chronic fatigue syndrome Abstract Background: The Stroop task was used to investigate differences in cognitive function between Long COVID (LC)...
  8. Andy

    Long COVID and recovery from [LC]: QOL impairments and subjective cognitive decline at median of 2 yrs after initial infection 2024 Szewczyk et al

    Abstract Background Recovery from SARS CoV-2 infection is expected within 3 months. Long COVID occurs after SARS-CoV-2 when symptoms are present for more than 3 months that are continuous, relapsing and remitting, or progressive. Better understanding of Long COVID illness trajectories could...
  9. Andy

    United Kingdom: Action for ME (AfME) news

    https://www.actionforme.org.uk/news/genetics-centre-of-excellence-webinar-recording/ Direct YouTube link: https://youtu.be/tAt9bwMfV4c?si=5OYB387sJe1d0L5R
  10. Andy

    Maeve Boothby O'Neill - articles about her life, death and inquest

    If it is a sensible protocol, that therefore has the possibility of saving lives, then it being restricted to one local hospital is obviously less than ideal. However, I would note that we aren't a a patient organisation as most people would recognise, so not sure why this Dr Hemsley would think...
  11. Andy

    Brain Fog in Gastrointestinal Disorders Small Intestinal Bacterial Overgrowth, Gastroparesis, Irritable Bowel Syndrome, 2024, Parkman et al

    Abstract Introduction: Brain fog (BF) is a term used to describe difficulties with concentration, memory, and overall mental clarity. Links of BF to chronic fatigue syndrome and COVID-19 have been described, as well as recently to small intestinal bacterial overgrowth (SIBO) and probiotics...
  12. Andy

    Network structure of functional somatic symptoms, 2024, Fischer et al

    "In brief, N=3,054 young adults residing in Switzerland were recruited via college and university mailing lists between 2009 and 2010 and participated in an online survey on functional somatic syndromes. Mean age was 24.6 ± 5.6 years, 2,042 (73.4%) of the participants were women and 812 (26.6%)...
  13. Andy

    Network structure of functional somatic symptoms, 2024, Fischer et al

    Introduction Medically unexplained symptoms or functional somatic symptoms are highly abundant in the general population [1] as well as in primary [2] and secondary healthcare settings [3]. In specific constellations, they have received labels such as “chronic fatigue syndrome” [4]...
  14. Andy

    Network structure of functional somatic symptoms, 2024, Fischer et al

    Full abstract. Highlights The network structure of functional somatic symptoms (FSS) was estimated. Ten communities (i.e., groups of symptoms) emerged. Central symptoms connecting FSS were fatigue and depression. In addition, bridge symptoms connecting FSS and depression were identified. These...
  15. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 28th Oct. Twitter: Facebook: https://www.facebook.com/sci4me/posts/pfbid02V2wHGkzChGSvqHLLEgFPLHvbFTu8YWbXhADfSbYwjhC3v57r1tdCWZFHpKhEupBul Mastodon: https://med-mastodon.com/@s4me/113424097488598850 Bluesky...
  16. Andy

    Medically not yet explained symptoms in hypothyroidism, 2024, Hegedüs et al.

    Previous output from Van Der Feltz-Cornelis as either lead or co-author. Prevalence, risk factors and characterisation of individuals with long COVID […] in over 1.5 million COVID cases in England, 2024, Wang+ Prevalence of mental health conditions and brain fog in people with long COVID, 2024...
  17. Andy

    Preprint Guardian angels off duty? ME/CFS is Sustained by an Impaired Stress Response in the Central Nervous System, 2024, Renz-Polster

    Previous publications from Renz-Polster, When COVID does not heal: post-COVID courses with fatigue and exercise intolerance 2022 Renz-Polster and Scheibenbogen Preprint: Broken Connections: The Evidence for Neuroglial Failure in ME/CFS, 2022, Renz-Polster The Pathobiology of Myalgic...
  18. Andy

    The Concept of ME/CFS, 2024, Edwards

    On average, my peak hours are normally between late morning and mid afternoon. Cognitively before that period I am typically at my worst, and afterwards is when my physical capacity starts to diminish as time passes.
  19. Andy

    Long-term course and factors influencing work ability and return to work in post-COVID patients 12 months after inpatient rehabilitation 2024 Müller+

    Abstract Background Rehabilitation plays a crucial role in restoring work ability and facilitating the reintegration of post-COVID patients into the workforce. The impact of rehabilitation on work ability and return to work (RTW) of post-COVID patients remains poorly understood. This study was...
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