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Yes anything that infers a ‘feeling’ rather than what it is which is that deterioration the big issue we battle with is that we can only ‘prove’ someone wrong by yielding to what they force on us and it deteriorating us. Eventually it affects your ability to speak or move out the way to keep...

Thanks for posting this. I’ve a few things going round in my mind having read Chris Ponting’s useful posts that seem a direction forward as an ask and thinking about the issue of inquiries and getting the right and whether they can ‘put off’ emergency changes etc that might be needed for the...

The key thing with eg me/cfs is that I guess people are assuming we are deluded in thinking that we will get worse if we try and increase what we do (or list many other things like the idea of exposure therapy for light sensitivity) and of course the more severe we are the more ridiculous what...

If I think of it like the video of the Ocado robots (groceries stored in Index system then order comes in and robots go to fetch items from correct ‘locker’) then I think* I agree. It’s not that the items were put on the wrong shelf. Although sometimes I will say a phrase naturally but wrongly...

Agree and yes I always assumed the term came from assuming they should minimise what we described (to something close to hysterical woman exaggerating her ‘bit if a headache’) it’s also a major issue because there are very different quite specific symptoms that happen in reaction to different...

I think I'm just as offended by the following: I think I was there enough at the time, even though I didn't really read anything from or about him on fb or twitter bar the odd bit with a pinch of salt, and got the gist he was being given advice and a lot of support and welcoming, but don't...

It’s so sinister when you think about what they mean. Imagine an old gaming system where you put a cartridge or cd in and then it took a while to ‘load’ and then you could play super Mario bros or a racing game. even with those many errors might be hardware , in fact the only errors that are...

I am of the motion sickness group. Whilst I’ve not the greatest ENT including ears I’m not sure it is vestibular - I’ve had labyrinthitis to compare and it gives me vertigo where I almost feel like I’m tipping on the bed or at sea. you see I get motion sick with everything and it’s genetic as...

Interesting. I'm getting a wholly back-and-forth picture which seems to vary hugely depending on the subject For example on the immigration, human right type front/side of his interests, then this article 'seems' to show an openness to learning (although the points made are specifically in...

Poor them , yes it’s like having to calmly say (so people don’t accuse you of jumping the gun) they are being required to play along with expecting a tiger to suddenly not tiger for the first time in their life when someone chose to put the tiger there knowing what they were I think the letter...

Did he know it would appear next to theirs ? Is he associated with them does anyone know?

Just needs the addition of “and NOW no evidence-based ways of being made more disabled”

We really should compile an anthology of these somewhere because I think there is power in ‘if someone read these all through together’ then it looks quite different as to who’s a bit whatchamacallit I’ve certainly also read through some papers in the past and to fresh eyes they don’t just...

Yes he does well at handling certain characters and tactics your mentioning it has almost inspired me to to do list watching some of these back through to learn a few lessons on the ‘how to handle / approach x’

From coverage of a totally unrelated case over in France at the moment there was a powerful point where the lady said “it’s not for us to feel shame it’s for them” I don’t want to steal or misappropriate but it has made me think on how some types just won’t or can’t do the shame or facing up...

Gotta love how they hedge round ever suggesting anything that would reduce or provide actual support to allow someone the window to reduce allostatic load it’s like don’t mention the elephant in the room : the loads bigger fir them and they do worse so it must be somehow to do with them , they...

I watched the channel 4 programme on undercover:exposing the far right They were looking into an organisation that had two arms: research and marketing the research was race-based and that company was basically getting sponsors funding it to do research that backed up derogatory...

That’s what makes me pause when people talk of an enquiry It sort of needs to be at a point where things are understood that the huge amount of money spent on this ‘third way’ system have just been a massive drain only advantaging those creating their own kingdoms of happy to take up cushy but...

This is a fascinating point to ponder on when you think where does the power lie within this and who is pulling who’s strings in the pattern. You wonder whether cochrane exempting the cfs/me part was somewhat just naive and normal with intentions (the usual pragmatic politics etc not...

I don't know what I can write on here but worth looking through past stuff regarding the history, of questions that were asked and answers given or not.