Search results

Full title: Online acceptance and commitment therapy (iACT) for adults with persistent physical symptoms – 3-month follow-up study of a randomized controlled trial Highlights This RCT (n = 103) examined whether online ACT + TAU was superior to TAU for PPS. Adults with PPS related to indoor...

News in Brief posts for w/c 10th June. Facebook: https://www.facebook.com/sci4me/posts/pfbid02AzxCeyhDBGpYWFPCHXWugJpyGKZiDDaAT8YuqPZfiweTeBcgcL5Y3siTWJx5rvfrl Mastodon: https://med-mastodon.com/@s4me/112625686731099863

Abstract Functional somatic disorders (FSD) are common conditions that result in a significant deterioration of the quality of life. Their origin is multifactorial and poorly understood, and their management is often inadequately defined. Medications typically show limited effectiveness, while...

Twitter thread from the EMEC listing "the 31 new and re-elected MEPs who signed the #MECFS pledge"

Here you go.

As seems to be typical for all these types of researchers, ME/CFS is not mentioned in their publication, but from their website, "Some of the most common diagnoses characterised by functional symptoms include: Fibromyalgia, Chronic Pain disorders, Irritable Bowel Syndrome, Bodily Distress...

"7 participants with lived experience of FSS were recruited, who varied in age from early 20s to late 40s. This group represented a balance of genders, with 4 women and 3 men taking part. They represented 6 countries: Portugal, Ireland, the UK, Germany, Denmark and Spain. 5 had majority and 2...

All authors are listed as being from Department for Functional Disorders and Psychosomatic Medicine, Aarhus University Hospital, Denmark

Highlights There is a lack of therapeutic information about functional symptoms online. We undertook a collaborative research-action project to address this gap. Through participatory design we developed open-access website bodysymptoms.org. Lived experience and multi-disciplinary...

Absolutely, please do.

Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open access, https://www.mdpi.com/2077-0383/13/12/3486 Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an acquired disease with...

Action for ME on Twitter, "We have been made aware of & understand the concerns relating to the Electric Robin Docu Series & its inclusion of #pwME We have not received contact from the production team & are not providing any guidance or advice for the series."

The ME Association Template Letter: General Election, https://meassociation.org.uk/2024/06/the-me-association-template-letter-general-election/ "ME/CFS is very disabling neurological condition that affects at least 250,000 people in the UK, Many more people have developed ME/CFS during the past...

Don't think it is highlighted in this thread that Garner is now on the Board of trustees of Sense About Science, https://senseaboutscience.org/who-we-are/board-of-trustees/

Full title: Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient and public involvement within the EUonQoL project Abstract Background Patient and public involvement (PPI) has become an essential part of health research...

Abstract Background An integral aspect of patient engagement in research, also known as patient and public involvement, is appropriately recognising patient partners for their contributions through compensation (e.g., coauthorship, honoraria). Despite known benefits to compensating patient...

Thread on HADS here, https://www.s4me.info/threads/the-hospital-anxiety-and-depression-scale-hads-a-discussion.10160/

Background Undertaking Patient and Public Involvement (PPI) when developing health and social care research grant applications is critical. However, researchers may not have any funding to undertake PPI when developing grants. In response, the National Institute for Health and Care Research-...

"The majority of participants were women (72.1%), white British (68.9%) and not in full time work (78.3%), with 24.6% on long-term sick leave. Seizures (24.6%) were the most common primary FND symptom identified, with other subtypes broadly represented. The majority of participants (95.1%)...

Full title: Illness perceptions, experiences of stigma and engagement in functional neurological disorder (FND): exploring the role of multidisciplinary group education sessions Abstract Background A critical first step in managing functional neurological disorder (FND) is a positive...