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I'm a bit late to this, but the Solve paper is about getting a home for infection-associated chronic conditions. Of course Long covid should be focussed on - it is new and is having big impact. It's a reason for change. To a lesser extent, Lyme disease is spreading over the US - again, that's...

Results There were people who didn't attend the initial session or stopped attending the sessions, and that will probably have affected the results, but the rates of participation (for the 4 sessions) aren't too bad. No statistically significant difference at 13 weeks or 26 weeks. Table 2...

I think, just assuming a normal distribution with that mean and that 95% confidence interval, that there is a 13% chance that the true mean is the supposed clinically important difference of -2.3 or more. Which makes sense if you look at the reported 95% confidence interval of -2.67 to -0.97...

Well yes, and even then 'conceivably' is doing a lot of heavy lifting. As @rvallee would say, the giant spaghetti monster in the sky is conceivable, it doesn't mean it is likely. As Nightsong said the Toussaint paper suggested the standard error of measurement was 2.3, which seemed to be...

Of the 354, 176 were assigned to usual care and 178 to the intervention 135 assigned to usual care made it to 52 weeks; 144 in the intervention made it to 52 weeks. The numbers used in the Intention to Treat Analysis were those still present at 52 weeks, so did not include people who withdrew...

7837 people identified from GP records 891 excluded or not sent a participation pack - mostly due to the GP saying they aren't suitable e.g. because their symptoms probably are due to a real disease, probably also some GPs would know some patients would not be receptive 6946 sent the...

It looks as though harms were reported by participants, but I assume that if the participants stopped participating and weren't contactable, then the harm wouldn't be reported. There is no indication that medical records were checked during that following year or that there was any feedback from...

Randomisation; masking A big deal is made of randomised allocation of people to the treatments. But that is rather insignificant when the participants knew whether they were allocated to the active treatment or 'nothing'. Just noting that quote about some interviews of participants they did -...

Diagnosis See the post upthread for the list of questions in the PHQ-15. I note that women have to answer an additional question about periods, and I think most menstruating women would answer at least 'bothered a little' about period symptoms. So, the PHG-15 and the diagnosis approach makes...

Introduction What nonsense - that a third of referrals from GPs to specialists is due to functional disorders and physical symptoms disproportionate to detectable physical disease. And then they say the quote above, about multiple physical symptoms, which actually has nothing to do with the...

I'm noting the different responses from forum members to this questionnaire, which is a PROM, and the MEA-funded work of Sarah Tyson's team. The developers of FUNCAP consulted widely and meaningfully and with humility, and adapted their product as a result of the feedback. PEM is central, with...

I'm pretty sure though that the orthostatic intolerance in my children and I started at the same time as all the other symptoms. And so that was at a stage when we were continuing to try to function as normal, doing sport and being active. It's a long time ago now, and I guess there must have...

Some posts have been moved to a new thread: Annual reviews for ME/CFS

You can help here: Norwegian guidelines in development: help with a literature search

Welcome to the forum, it's great to have you here. That's exciting news and good that the user organisations have a seat at the table. Yes. Although, I worked with a regional health authority that made guidance to doctors when they were faced with a person complaining of exhaustion/tiredness...

I'm so sorry about your Dad's illnesses. They do seem like they might be a clue as to what happened to you. ITP - is that immune thrombocytopenia?

Thanks @Wyva, so we have a whole batch of papers on poorly conceived studies to look forward to. When no cognitive dysfunction shows up, I often wonder about the selection of the participants. I think we might have expected some worse performance on more of the named tests e.g. the trail making...

Click on the tag at the top left of the thread - 'Mastroianni' - for more content by Adam Mastroianni e.g. The Rise and Fall of Peer Review, 2022, Mastroianni [Preprint] Things could be better, 2022, Mastroianni and Ludwin-Peery

What then do they think are the problems? Society's belief that objectively measurable disorders are more real and worthy than other disorders. Negative stereotypes Actions to stigmatise - the things clinicians do and say Discriminatory outcomes So, rather than investigating if the...

And that's the end of that possible source of stigma as far as the authors are concerned - when actually power differences and the magnification of them by a 'functional' diagnosis are the heart of the problem. If the authors are reading this - maybe look again at what you so readily dismissed...