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  1. NelliePledge

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    The wording was not as clear cut as yours. May not be particularly effective (or something on those lines) was what registered with me which unfortunately still leaves the door slightly ajar.
  2. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thanks @Joan Crawford ive added Chester to the signatory list.
  3. NelliePledge

    United Kingdom: Action for ME (AfME) news

    Had to search the blurb to find the date reasonable timeframe- 30 April
  4. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Hi @Joan Crawford. We did contact a lot of UK groups through ME Local which is included in signatory list not sure if that includes Chester? But we’ve also got groups that signed up in their own name. Happy to add Chester to the list based on your request nothing further needed.
  5. NelliePledge

    United Kingdom: Action for ME (AfME) news

    AFME looking for up to 3 Trustees https://m.facebook.com/story.php?story_fbid=pfbid029maC7L8DJBm4b4gPn1RuMRyMUe19bsn6DoGahvh2dvVWwpVPmhjLCTMBe4pHA6Lpl&id=100064839214273 https://www.actionforme.org.uk/get-information/about-us/work-or-volunteer-with-us/
  6. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    ▶️ Watch this video https://www.facebook.com/share/v/XLCjjrteGGX6BQRf/?mibextid=WC7FNe Video from Carol Monaghan MP feeding back on the APPG meeting this week including signing up to the open letter to Cochrane
  7. NelliePledge

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I read this as ones so obvious you can’t miss (like shooting at a barn door)
  8. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Thanks to the APPG who have been added to the list of signatory groups/organisations, now standing at 70.
  9. NelliePledge

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Effort preference is definitely going to get picked up on
  10. NelliePledge

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Blimey that’s OTT by Hornig “a tour de force” is she related to Wallitt or something.
  11. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    The candidate I’ve spoken with has said she will join the APPG if elected
  12. NelliePledge

    Trial Report A Pilot Feasibility Study of the Effects of Color and Light Therapy for Patients with Chronic Fatigue/ME, 2024, Roseman-Halsband & Bested

    Well we know from her talk about pacing at one of the CDC dial in presentations in 2018 that she’s a big fan of “pretty water coloured memories of the way we were” from her attempt to get everyone singing.:whistle:
  13. NelliePledge

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    Great he highlighted that awful patronising Chalder et al video.
  14. NelliePledge

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    The vast majority are not managed by anyone in NHS
  15. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    For an election at the same time as the local elections on 2 May it will need to be called in just over 5 weeks time.
  16. NelliePledge

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    if it was down to me objective measurements would definitely be addressed. I guess I was being pragmatic focusing on the product in front of me and the prospect of moving on from the status quo.
  17. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I think that it is very sensible timing.
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