The wording was not as clear cut as yours.
May not be particularly effective (or something on those lines) was what registered with me which unfortunately still leaves the door slightly ajar.
Hi @Joan Crawford. We did contact a lot of UK groups through ME Local which is included in signatory list not sure if that includes Chester? But we’ve also got groups that signed up in their own name. Happy to add Chester to the list based on your request nothing further needed.
AFME looking for up to 3 Trustees
https://m.facebook.com/story.php?story_fbid=pfbid029maC7L8DJBm4b4gPn1RuMRyMUe19bsn6DoGahvh2dvVWwpVPmhjLCTMBe4pHA6Lpl&id=100064839214273
https://www.actionforme.org.uk/get-information/about-us/work-or-volunteer-with-us/
▶️ Watch this video https://www.facebook.com/share/v/XLCjjrteGGX6BQRf/?mibextid=WC7FNe
Video from Carol Monaghan MP feeding back on the APPG meeting this week including signing up to the open letter to Cochrane
Well we know from her talk about pacing at one of the CDC dial in presentations in 2018 that she’s a big fan of “pretty water coloured memories of the way we were” from her attempt to get everyone singing.:whistle:
if it was down to me objective measurements would definitely be addressed. I guess I was being pragmatic focusing on the product in front of me and the prospect of moving on from the status quo.
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