Search results

https://johnsnowproject.org/insights/endemic-sars-cov-2-and-the-death-of-public-health/

Template open letter to healthcare providers to protect staff and patients . https://johnsnowproject.org/do-no-harm/

Perhaps due to the team who drafted the recent guidelines ....

I think this is trying to address some of the issues with the NHS at a wider level . From recent " scandals", it's clear that there is so much of a blame game culture that whistleblowing is a very risky business, with the result that bad practice exists for longer than it should and more harm is...

Post COVID group all male (16) . Matched controls not all male (11 male out of 16 ) It may make no difference at all , but given differences between male and female responses and manifestations are being discovered / acknowledged across multiple medical conditions it is perhaps disappointing...

General AI info - mods move to better thread if applicable

Not quite long COVID but interesting thread . Very long

Used to be the sunlight aspect ( vit d) and Celtic gene that were thought to play into distribution. Heat - well there's always a joke for Scots cold tolerance / heat intolerance , so who knows

No treatment hardly qualifies as second rate ( that would imply there actually is treatment) ...

Reminds me of a Facebook post from around 3-4 years ago on a closed group where someone with ME/CFS had been assessed by DWP and advised that they were capable of working for 12 mins per hour. Where in earth do you find an employer offering that .... and how would any employer find your illness...

Interesting twitter thread highlighting mechanism . Seems to be relevant to POTS too. Given overlaps the mechanism is interesting - calcium channels , which have been discussed in ME/CFS research. For some cold exposure reverses effect ( thinking of "cold" treatment collaborative research by...

Merged thread Ady Barkan has died of complications of ALS . A tireless advocate and campaigner who has helped to change the narrative around care in US . RIP

Given that "causes" vary , it's the end state that is common . There are probably many biological pathways to this end state , which may be modulated by genetics / epigenetics, so things working / not working didn't seem that odd to me - just frustrating . It's a " systems " condition , and...

This, so much this . It's wonderful for muddying waters and perpetuating harm.

I don't know but am often struck by symptom overlap with Parkinson's / Alzheimer's ( which both can feature hallucinations and paranoia) , which is reinforced by some people responding to dopamine modulating medication, so there may be a mechanism / shared symptom pathway. This may be more...