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This is the wrong framing. This is the correct framing: The patients are merely reporting what is happening to them and appropriately seeking help at the right place, which is then contested because medicine is still limited in what it knows, but is unable to operationalize those limitations...

Not surprising. Ultimately the biggest flaw with evidence-based medicine is that more often than not, if you change the people you change the outcome. And it applies at every single step, from design, approval, funding, oversight, review, meta-review and so on. Every single one of those steps...

It's like they're playing roulette but with an additional option where either red or black gives them back all their money, and if they fall on 0/green the casino gives them a win, even if they didn't bet on it. This literally disproves the model, and they market it as a win anyway, and will get...

That's my assumption as well for why they don't care and don't bother. They are confident that in the worst case scenario no one but us will know or care about it. If anything, hubristic editorials are likely to be written about how they prevailed against activists. At least for a while it will...

An IAG who, as best as we can tell, has zero powers. The promised updated review was not accepted by any working group, it is merely advisory. Even if it gets accepted and published, it would be, what, an independent review, competing for attention with the current one? It's a "dog ate my...

Given that most with Long Covid report finding it impossible to get diagnosed, I don't know what that even means. Reducing those costs always had the same solution: solve the damn thing, quit covering it up, record what is happening. But they won't be doing they, will they? All those costs are...

We're missing from our own protests. How meta.

Wait, they probably worked "very hard" on this so I feel I should be more respectful of that effort. Here's a better version:

At this point I think the only non-delusional way of putting it is that the interface is what's neither mind nor body, and where everything is happening. Or whatever, it's not as if this is supposed to be a real explanation. It makes about as much sense as saying "I'm not saying it's ghosts, I...

Just arbitrary boxes (OK, fine, circles) and labels to suit their fancy. The only difference with the same stuff from the 19th century is a few label changes and that it was hand-drawn back then. I made an improved version of their diagram:

United Kingdom https://www.gofundme.com/f/billboards-for-long-covid-and-mecfs

I wasn't sure where to post what will be the 2nd message in this thread, but it made sense to create a thread for it. There have been several substantial efforts so far in Germany, I've seen some in the US, on mass transit and highways, and it would probably be helpful to have a resource for...

The natural outcome of the biopsychosocial model and its constant need to degrade and lower the quality of evidence. You could use this model to prove that drinking cow urine is good. It's what it's for: to prove anything you want. You just have to try it again and again and again until you get...

Well that is a meandering word salad of old tropes trying to justify the same old debunked nonsense yet again. They're just juggling words but equating them right away anyway. It's a level of twisting the facts to bend to their expectations similar to flat earthers and other types of quackery...

This reply, in image form:

I'm pretty sure they always mean institutions here. Patients are not expected to use the reviews, only professionals are. We are the product, essentially.

They could have just replied with a poop emoji. Same thing, really.

The whole thread on the symposium is interesting. Some good bits, some bad bits (like Knoop). Appears to be about COVID in general but LC was very prominent. https://nitter.net/Pascalgrootveld/status/1714959210528571873 Also: wow is using nitter so much more useful, when you use translate page...

And yet this same dude will say otherwise at other times, and has made his entire business model around pretending that there are. So what are they pretending here? That CBT and GET are just a bit helpful? Or making some arbitrary distinction between their made-up concept of exhaustion disorder...

Microbiota from Alzheimer’s patients induce deficits in cognition and hippocampal neurogenesis https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad303/7308687 Brain, awad303, https://doi.org/10.1093/brain/awad303 Published: 18 October 2023 Abstract Alzheimer’s disease is a...