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good video. Interesting (and heartening) to hear that the publishers approached them given all the Fiona Fox stuff etc published over the years you could be kidded for thinking the demand was ideology-based nonsense. Their last message about how it is important for physios doing any type of...

I'm writing something here for now just to bring this one back up. I haven't had the chance to read it through and think in detail but know when it was first up I did think that these three terms are pretty fundamental in the issue of how we are treated and the paternalism and lack of respect...

Given they apparently keep the ‘what happens on camp stays on camp’ secret they could easily come up with an alternative fake version to account for disappointment effect in the control group of believers too. I don’t know about the prospect of them being led to believe they’ll end with a...

It used to be called parapsychology I think back when that area of things like this and spoon bending and so on were used to test peoples ability to learn research design (and ergo when you wanted to remove bias or ‘coercion’ bring possible fir results) so the first part of the ‘treatment’once...

Indeed and then there is the issue of overlap/comorbidities and diagnostic certainty making it hard to be sure quite what they are looking at other than ‘people diagnosed with x or y’ (but you can’t be sure they don’t also have x,y,z or anything else I assume)?

Surely this is another area where the biggie is about longer-term follow-up not whether someone's fitness short-term changes? POtentially it is a good way to increase likelihood of long-term side effects from cancer treatment by having people 'pushing through' when undergoing something gruelling...

Agree on the tiredness one, hard to do. And of course on well done for this protest - not easy to do at all with ME, so massive admiration to them. One other awful side-effect of the usage of tiredness inaccurately instead of ill is that we do get tired, but it is tired in 'our illness state'...

Realised as I used the phrase 'Krypton Factor filter' a bit these days and it was a TV programme in the UK back in the previous century I should post a link: https://en.wikipedia.org/wiki/The_Krypton_Factor Basically it would involve 4 contestants being put through round testing different...

I'm struggling to read through the plan and know the right places that you'd even start to cover some of these issues. 1. I've seen others on social media mention the need for education to cover other services e.g. dentists, opticians and so on. I agree here. There is a major issue with the old...

Indeed, it is also conflation/distraction - is there anything about a review doing whatever that means something historic and inaccurate can't be withdrawn? If there isn't then it just seems to example an attitude issue to hide behind that

First, without seeing the details I can't confirm its effectivenes on being more than 'a nod' to inclusion, but good to see this type of step maybe inferring things heading in the right direction in considering method: But who were these experts and what actual physical health condition did...

I feel like we need an open/repeatedly findable thread (as it will take a while to build up thoughts) to focus on working up how to tackle and unbundle the switch and bait issues of the 'biopsychosocial' or psychosomatic or 'behavioural psychology' (which is what I think is really what it is...

Geez it's specific I guess when it comes to articles of company but also complicated because of the rather ambiguous umbrella of LC including those who have the ME/CFS type, and perhaps indeed other 'forms' but also those who mightn't have the 'ME/CFS type/types'. And agree that because those...

I'm not sure it is for us to sign rather a requests for psychologists or psychiatrists to sign it. I don't think that this is the 'official BPS (British Psychological Society) one' though - I imagine there are probably a few different ones about (?) with people from different angles etc even...

Yes they seem to have a very specific way of looking at and seeing certain things vs others might on 'the framing'. And it is about time the field was made to define at least the broad different component 'fatigues' that the ambiguous term umbrellas for and leaves apples and oranges and...

So the opposite of what the abstract says as its one line conclusion?

I feel like there needs to be an annual competition now for what you could use this technique to claim to prove - come up with the silliest of possibilities. My starter for ten: I'll recruit 250 schoolkids and ask them to spend 4 hours a week practising music at grade 8 violin level. 200 of...

So out of 272 people they identified as potential participants at the start (most either couldn't due to cardiovascular or clearly said 'I don't think so') it whittled down to 20 who completed to 3-6months A success?!! For all? Based on comparing the ones most attracted to carrying on with it...

Yep I think we've seen a complete split/move happen now where at least some of these journals, and it being much more predominant in certain specialties/subjects, are basically being used as/operating as 'media' rather than 'academic' and the various expectations relating to what is involved...

An example really worth them including so it brings alive what it is like with the egg-timer vs if the 'environment' doesn't change/is as it is A few other possibilities, like pretending to listen (or thinking they are ) but not really internalising and hearing to 'get it' or think 'oh that...