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I don’t see oncologists as bystanders. They are directly affected as this MUS and gatekeeping approach is affecting their ability to do their job effectively.

Possibly another way of saying Munchausen by proxy

About time this was highlighted

Yeah so the spa music and eye mask don’t make you relax a bit it absolutely definitely the stickers that are a completely genius new invention. Tale worthy of Hans Christian Andersen

hear hear. I’ve now had a chance to look at the pictures. The woman in the picture that appears to have offended some is a similar build to me. I think the images are intended to be easy to understand for the intended audience. The UK population includes people of all shapes and sizes so...

Spot on :emoji_dart:

Great response almost 1500 people signed today

Chris’ room looks like it is one of those old buildings with pretty high ceilings made me think maybe an acoustic issue? I had to turn the sound up a bit too and then could hear ok good conversation - 2 top blokes :thumbup:

20h inactivity could be a fair number of the adult population over a boozy bank holiday

These psychosomatic people choose to read normal human reactions to difficult situations as “catastrophisation”. I choose to read it as common sense learning from experience.

More waste of people’s time and effort

Agreed still symptomatic, for me on a good day I am at the upper end of mild, good for me is being able to take part in a social activity out of the house such as watching my team play football or lunch with friends. eta probably should have said I once every couple of weeks for a big activity...

this also, if like me you’re not severe, taking the opportunity of talking about how you’re affected to explain that there are people who have severe/very severe ME

Snake oil university

:wtf::emoji_warning:

Also because the headline was about severity perhaps just using that word made a difference especially to anyone unaware that ME can actually be severe.

When you don’t live with stuff it goes off your radar. Also it’s like learning at school an element of repetition is necessary for information to sink in.

Don’t know how many they see? Also take into account materials/training for GPs IAPT provided based on PACE. Not inconsiderable impact

Thus proving there’s no difference between these corporate purveyors of CBT online as a panacea and ‘big Pharma’ CBT deflection tactics used just as antidepressant deflection tactics. Any old product as long as the patient can be fobbed off with it

The fact that for 10/15 years the NHS CFS clinics actively discouraged people with ME from engaging with patient organisations must have contributed to this situation.